Good Things | - Part 24

June 7, 2018June 8, 2018

A Surprise, But a Good One

Kate and I were sitting in the family room before leaving for lunch. As usual, music was playing on my audio system. This time it was a John Galway album. She said, “I love that song.” I said, “I do too, but I can’t remember the name.” She said, “Beauty and the Beast.” I said, “You’re right. I’m surprised you could remember that.” She laughed and said, “I am too.”

It has been many years since she saw the musical, and this is not an album I have played a lot. I am amazed she could recall the name. As she sometimes says, “Don’t count me out yet.”

It’s another reminder of the power of music.

June 7, 2018

Taking Stock of Where We Are

Once in a while I like to ask myself how I am feeling about the way things are going. Right now, I would have to say that I am not as upbeat as I have been in the past. Kate is changing, and I am changing along with her. What is most encouraging is that we are still active and enjoying ourselves. On the other hand, she is finding it even more difficult to perform certain tasks that before.

A good example occurred yesterday at Panera. She was working a puzzle on her iPad and got stuck and asked for my help. When I looked, I could see that all but two pieces of a 16-piece puzzle were in their proper places. She thought she had put the other two in their right places. She couldn’t see that a little of the background was showing around the edges of each piece. She also didn’t notice that the images on each piece did not fit where she had put them.

To help her, but not do it for her, I moved the two pieces to the side. That left two vivid orange spaces begging for the right pieces. I not only placed the pieces to the side, I put one above the other that would match the location of the appropriate spaces. She struggled trying to figure out which piece went where. I don’t actually I know if she got them. I tried to look, and she blocked my view. She may have just started over. One of the surprising things is that she placed the first 14 pieces in their right places and does so all the time. I know from past observation that she works very slowly and goes through a trial and error process.

When I see the trouble she has with her puzzles, it isn’t surprising that she is having difficulty getting dressed and undressed. Both of those tasks demand a lot of time and also trial and error.

I attribute her increasing dependence on me as well as her compliance as a direct result of her recognizing that many tasks are becoming difficult. I still don’t see any signs that she is frustrated or emotional in anyway because of these challenges. I do see looks of bewilderment, but that’s it. I am taking that as a good sign, but I don’t like seeing her work so hard to complete such routine tasks.

It is clear to me that from an emotional standpoint, I am the one who is facing challenges. For the first time in my life, I have experienced anxiety. It is evidenced in my forgetting things that I would normally remember. Yesterday, for example, our sitter told me she would not be able to come on Friday. She asked if the agency had told me. I told her they had not. Later I spoke with the agency. The person with whom I spoke said she had told me last Friday and that they are sending the sitter who comes on Monday. I had completely forgotten it. I also find that I am waking up at night and having trouble getting back to sleep, something that rarely happened in the past.

Fortunately, we are still getting out. That provides both of us the kind of stimulation that we need. We are having lunch with church friends today. Tonight we will be at Casa Bella for opera night. We have several out-of-town visits with longtime friends. This Saturday we will lunch with the Robinsons in Nashville. After that, we will visit Kate’s best friend, Ellen. We’ll be back in Nashville next Tuesday for a visit with the Davises. The following week we will also visit with the Greeleys. Since all of these friends live in the Nashville area, you might think it would make sense to make a single trip and stay a few days. In some ways that is right, but doing it in multiple trips prevents Kate from having too much social contact in a single time frame. That wears her out and can be confusing for her. We avoid that by taking multiple trips and spread out the pleasure. It makes each trip a little more special.

Let me close by saying once again life is changing. It is more challenging in variety of ways. At the same time, we are actively engaged in supportive activities and happy about our lives. We are far better off than many others who are making this same journey. We continue to be grateful and wish that everyone could be so lucky.

June 1, 2018June 1, 2018

A Special Anniversary Lunch In Asheville

Kate and I have celebrated our anniversary in Asheville many times. It comes around Memorial Day, and there are always interesting things happening while we are here. When we were here last year, I wasn’t sure that Kate would be back this year. As with so many things, she has surprised me, so I made plans just a couple of weeks ago. I’m glad we made it one more time.

If you’re a regular reader of this blog, you know that Kate and I have a daily routine when we are at home in Knoxville. Apart from our morning visit to Panera for Kate’s blueberry muffin, we know the restaurants where will be eating for lunch and dinner each day of the week. That routine has created an interesting and very supportive network of people. We find that we are drawn to the various restaurants more for the social reasons than for the food itself.

That leads me to tell you about a special relationship we have developed with a server here in Asheville. We met her at lunch several years ago, when she was working at one of our favorite places. On a later trip, we went to lunch at a different restaurant. It turned out she had moved to that restaurant, and she remembered us. Since that time, we have made it a point to eat There each time we visit the city and, of course, ask for Melissa.

The last time we were here was in December. I mentioned that we might see her again at the end of May, but I was doubtful. She asked for our home address and sent us a Christmas card with a very nice note attached. I was touched by that and intended to write her a note telling how much her note had meant, but I lost the address. I decided I should call the restaurant to get it but never got around to it. Then as our anniversary date got closer, I thought about making the trip back to Asheville to see her as well as Jenny who works at the front desk at the Haywood Park Hotel where we always stay.

Two weeks ago, I called the restaurant and learned that Melissa had changed to another restaurant in town. It’s another place we have eaten a number of times over the years. I called and left a message for Melissa to text me. She did, and we arranged for this year’s visit.

Our lunch turned out to be the highlight of the day, not because of the food (which was excellent) but because of Melissa. I should add that we have established relationships with servers in a number of restaurants in Knoxville. That is not surprising given that we see them so frequently, most of them once a week. This bonding with Melissa is unique in that we are here only two or three times a year at the most, and I don’t know that we will ever be back. What I do know is that it is possible for people to connect in a special way even in something as fleeting as a “server/guest” relationship. Melissa and other servers who have been so kind to us may never know how much they add to our lives.

Postscript: We discovered that she and her husband’s anniversary was also yesterday. It’s just two years for her, but I hope our 55 years together will be an inspiration for her.

May 31, 2018

Our Fifty-fifth Anniversary

Kate and I married 55 years ago today. Like every young couple, we began with somewhat vague hopes and dreams. All we really knew was that we were in love. We could never have imagined all that lay ahead. The good news is our dreams have come true. I don’t mean in any specific way. What I mean is that our love is deeper now than every before and that are lives have not only been enriched by our experiences but by sharing them together.

Life is much different now. Kate hasn’t been able to remember birthdays or anniversaries for several years. I have talked about this anniversary several weeks. She has never been able to remember it. That sounds sad, and it is; however, neither of us is feeling sad this morning. Kate is living in the moment. As usual, she is happy with this moment. We’re on our way to Asheville where we have celebrated quite a few anniversaries. We’ll stay at the same hotel where we have stayed for the past 15 years or so. We’ll eat at the same restaurants. We’ll enjoy our time together. Kate won’t remember it, but I will. She has little or no memory, but she is still able to enjoy living through her senses. I am thankful for that. Most of all, however, even though she is forgetting my name, she still expresses her love for me as I do for her. Who would have thought that this far into Alzheimer’s life could be so rewarding. We are fortunate people.

May 28, 2018

Memorial Day 2018

We’re off to a good start today. I woke up at 5:15 and thought about getting up since that isn’t too far off from 5:30 which I consider a good time for me. I checked the weather and discovered that it was raining, so I got back into bed. I woke again around 6:00. This time I just decided to stay there. The next thing I knew it was 7:00, so I finally got up.

Kate got to sleep easily last night after having slept late yesterday morning and taking a long nap in the afternoon. She was up at a typical time for her around 9:30. We are now at Panera where the crowd is slim this morning. I think a lot of people are out of town or were in earlier Kate is in a good mood, and we’re ready for a nice day.

As we started to get out of the car, she said, “What is your real name?” I said, “You mean my last name?” She said, “The one your parents gave you.” I told her, and she said, “I’ll bet that was your father’s name too.” It was.

I find myself analyzing Kate’s behavior in light of the book I finished reading yesterday, The Dementia Handbook. In this case, I could look on this incident with sadness. It is truly sad that she is forgetting my name. On the other hand, I have somehow been able to take pleasure in the things that she can do. I believe this one of the things that Cornish was trying to communicate in her book. There are many losses of “rational thought” for people with dementia, so we as caregivers need to focus on the many aspects of intuitive thought that our loved one’s still possess.

Interestingly (to me anyway), in the middle of the paragraph above Kate looked at me. I must have had a very serious, intent look on my face. She started to mimic my expression, and I laughed. She chuckled as well. Then I said, “You know, I think we were meant for each other.” She said, “If I could only remember your name.” Then I said, “Could I be serious a minute.” She nodded. I said, “Do you really remember my name right now.” She said, “If you tell me.” I did, and she said, “That’s what I thought.” It’s clear that she really is forgetting my name. It’s equally clear that she remembers me. I am glad that she can be so open about forgetting and that she can add a touch of humor to it. As I’ve said many times, my mood is heavily influenced by how she is getting along. When she’s happy, I’m happy. I’m looking forward to the day.

That takes me back Cornish’s thoughts about the retention of intuitive thought by people with dementia. Kate’s ability to correctly interpret and tease me about my serious facial expression indicates that her intuitive ability to read and respond to emotions is alive and well.

May 9, 2018

Kate, Always the English Teacher

At the time of Kate’s diagnosis, we were told that her greatest strengths were likely to stick with her the longest while her weaknesses would deteriorate more quickly. That has proven to be true for her. She has always been geographically challenged. Getting lost when driving to places that should have been familiar was an early sign of a problem. Among her greatest strengths is an ability to handle herself in a variety of social situations with different types of people. I have mentioned many times how well she gets along when we are around friends and strangers. Even when she can’t remember people, she is able to engage in brief conversations as if she did. That has enabled us to remain socially active longer than I expected.

There is another strength that I’ve never mentioned. It is also one that hasn’t disappeared. She got her bachelor’s and master’s degrees in English and taught English for three years before taking a break when our children were born. When they were school age she completed a master’s in library science. Throughout her career, she has always thought of herself as an English teacher. Our grandchildren could testify to that. They have been corrected by “Nan” concerning their use of the English language many times.

She doesn’t limit her corrections to the grandchildren. I am often called to task as well. Even now, she frequently corrects me about one thing or another. If she were reading my writing I know she would have many edits. These days her corrections usually involve my use of specific words that she believes do not capture precisely what I intended or should have said. For example, this morning after she remembered someone’s name, I said, “You’re right.” She said, “I am right sometimes.” Thinking I was supporting her, I said, “You are frequently right.” Then she responded. “It would have been better if you had said, “usually.” I said, “You’re right again.”

I make a point of this because it’s a good illustration of how much her brain is still working and working correctly. Once in a while she says something that surprises both of us. When that happens, she sometimes says, “Don’t count me out yet.” The most appropriate response is, “I won’t.” I know, however, there are many times when I don’t think she will remember something or be able to perform some task. The easy thing is to believe is that she can’t remember anything, do anything, or understand anything. It’s much harder to recognize that even this long after her diagnosis (7 years this past January), she still possesses a good bit of knowledge and skill. I think I’m very good when it comes to recognizing this intellectually. I need to work harder to put that knowledge into action as I care for her during this most challenging time of her life.

May 1, 2018

Not So Little Things Mean A Lot

In an earlier message I mentioned that Kate’s brother, Ken, was creating a photo book of family pictures taken from the time of their respective births to the present time. She was as excited about the book as he and I had hoped she would be. Because her memory is so poor, I wondered if, and when, she would look through it again. It’s over 140 pages, so I knew she probably wouldn’t look through the entire book at one time. We put it on the coffee table in our family room along with another family album. I thought that might help jog her memory. I’m glad to say that has worked.

One day last week when I arrived home to relieve the sitter, she and Mary were seated on the sofa. Kate was proudly showing the book to her and providing her own commentary. As I walked into the room, I could immediately tell that Kate was excited to be reliving some faded memories as well as sharing them. After Mary left, I took her place beside Kate, and we spent a little time looking through the book.

Yesterday when I got home, Kate and the other sitter, Anita, were sitting in the family room. This time Kate was seated on the sofa by herself with the album. She seemed happy as a lark as she turned from one page to the next. As I did when Mary left the other day, I sat down and looked at the pictures with her, and we did a little reminiscing. Ken put a lot of work into this album. He will be glad to know that it is providing both of us with such special moments.

April 21, 2018April 22, 2018

Surprise, Kate worked outside with her shrubs yesterday.

It has now been several months, since Kate has shown any interest in working outside in the yard. That is a dramatic change from the past when she worked through even the coldest months. I’ll never know what accounts for that. My guess is that the shrubs were so denuded that there were no longer any leaves for her to “pull.”

Yesterday that changed. When I came home after going to the Y and running errands, I found Kate pulling the new growth on shrubs along our driveway. I had two immediate reactions. The overwhelming one was a burst of happiness. It’s been a while since I have written about her work in the yard, so let me summarize why I felt this way. Since her diagnosis, more than seven years ago, Kate has had three primary activities other than those I provide for her.

One was working on family photo albums. She was introduced to this by her brother, Ken, who has completed numerous albums. He and Kate worked on one together, an album about their mother’s family. It represents a beautiful family history. She wanted to create her own albums for us and our children and grandchildren. She got her start after she was diagnosed with Alzheimer’s. Even though she worked on one for several years, she never got beyond selecting photos and editing them. Two years ago, she just stopped working on her computer altogether. She didn’t even continue with email. I think it got too challenging for her.

That left her with only two other activities. The major one was working in the yard. That meant pruning and “pulling leaves.” She had learned about the value of pruning long ago. As her Alzheimer’s progressed, I think she did it for herself more than here shrubs. It was a kind of therapy. It required little effort. When she had pruned back about as much as she could, she started pulling off the leaves. There were days when she would spend as much as 6 hours outside. It was great because she enjoyed it, and it was something she could do on her own without anyone’s telling that she was doing anything wrong.

This past fall she stopped working in the yard. I suspected that the colder weather played a part. In addition, we both had colds and the flu during the first of this year. When the weather began to improve, she didn’t get back to her yard work. I began to think it was a thing of the past, so I was much relieved to see her working yesterday.

I said, however, I had two immediate reactions. The first was elation. The second was apprehension related to the condition of the shrubs. I knew there was a chance that some of the shrubs could be permanently damaged by what she had done before, but I felt it was worth it for Kate. As spring has approached, I have been eager to see how many, if any, of the shrubs would come back. As I expected, it appears that some of them are dead. Others appear to have dead branches, but there is new growth coming from the base of the trunks as well as the roots around the base. In addition, there are some that look like they are going to be just fine.

So why the apprehension? That arises from the fact that the ones that look fine have new leaves that are sprouting. Those, of course, would be the only ones with leaves she can pull. It is still too early for them to have an abundance of new leaves. Many of them have only a handful. This means that the very ones that seem to be living may not ultimately make it. My hope is that enough of them survive to keep her busy until next winter.

Yard work is important to her and, thus, to me as well. If she loses that, she will have only one activity of her own, working jigsaw puzzles on her iPad. Right now she spends 5-6 hours a day, and sometimes more, doing that. It has become harder for her in the past year, but I see no sign that she is about to drop it. I never imagined how important an iPad be could. She doesn’t use it for anything other than jigsaw puzzles. I am thankful she has it.

April 17, 2018

Our Trip to Memphis

Kate and I returned from Memphis on Sunday. With each trip we take, I watch to see how she is adapting. I know that at some point, we will have to discontinue travel. I am glad to report that everything went well. Of course, we had the same kind of experiences we have at home, but they did not minimize the pleasure we had. For example, several times she asked, “Where are we?” She also asked me to tell her Jesse’s name as well as those of her two boys. I am optimistic about our upcoming trip to Texas a little over three weeks from now.

Breaking up our trip with an overnight stop in the Nashville area turned out to be a good idea. Kate normally spends so much time working jigsaw puzzles on her iPad that I sometimes worry about her being bored while we are in transit. She finds it difficult to work them in the car because of the frequent bumps in the road. The surprising thing is that she seems to get alone fine without her iPad.

The trip back home was a different story. We encountered bad weather off and on most of the way. The eastbound lane of I-40 was closed about twenty miles east of Nashville. The last mile before we had to exit took us an hour. The detour took another 30-45 minutes, so we were about two hours later getting home than I had expected. We were both glad to get home, but Kate took it all in stride. I am encouraged about additional trips like this one.