Follow-Up to Yesterday’s Shaky Start

As Kate had wanted, I went back to the bedroom to wake her about 10:30. Although she was sound asleep, she woke up easily. I reminded her that she had asked me to wake her, something I don’t recall her doing before. (I jumped on that opportunity.) She was a little groggy but got right up with a little help. I walked her into the bathroom for her shower and turned on the water. As she took off her night gown, she asked my name. I gave her my name but didn’t mention that I am her husband. She didn’t ask.

When she finished her shower, she asked if she could lie down a little bit. I told her that would be fine. She asked me to come back and get her up. I came back about twenty minutes later. She got up willingly and asked about her clothes. I picked them up from the chair where I had put them earlier and put them beside her on the bed. I gave her a bra and said, “Let’s start with this.” She looked at it strangely. I explained that she could put it on over her head just like putting on a top. I told her it was easier than most bras. She looked at me and said, “How do you know so much about bras?” I chuckled and told her that I had observed her having some difficulty with her other bras that fasten in back and went online to find something easier. I found a company that makes clothing for seniors and ordered several of them.

Although she asked my name off and on throughout the day, she seemed to know that I am her husband. Again, I didn’t ask, but we did talk about her parents and our children. We relaxed at home in the family room after lunch. About forty-five minutes passed. Then she asked, “What is your full name?” I told her. She asked me to repeat it. I did and said, “I’m your ‘Hubby.’” She laughed, not in a way that suggested she didn’t believe but just the opposite.

She continued to work on her iPad for at least another hour before deciding to rest. I thought that was a good idea since we were going to an opera (Tosca) last night and would get home late. This was only the second time in about a year that we have attended an evening event this late. All the music nights at Casa Bella begin at 6:00 and end around 8:30. The opera started at 7:30. We didn’t get to bed until 11:30. That’s a good bit later than our normal routine.

I had been looking forward to the opera and enjoyed it; however, Kate’s experience and mine were quite different. We bumped into a number of people in the lobby we have known from various places around town. I enjoyed seeing everyone, but I think it was a bit overwhelming for Kate. She didn’t appear to recognize anyone. Fortunately, each of the encounters was brief. We were seated beside and behind people we knew. Kate talked with them at the intermission.

When it was over, she was eager to get home. She said she hadn’t been able to understand anything and had “just tuned out.” She said she enjoyed the music but didn’t know what was going on. That fit with my impression during the performance. Several times she responded enthusiastically to a number of the arias. Often she is able to enjoy various performances whose plot she can’t grasp. That happens when she can enjoy the characters or situations in which they are involved. That wasn’t the case last night. In two weeks we are going to see the Live in HD at The Met’s production of Carmen. That will be a good test. If she doesn’t enjoy that, live opera may soon be a thing of the past, not because of the music but a lack of understanding of the plot. I am hopeful that she will continue to enjoy opera night at Casa Bella for quite a while. In that case, the focus is on the music itself.

Kate’s Humor

Although Kate appreciates humor, she has never been one to joke or kid with people. It has only been in the latter stages of her Alzheimer’s that she has taken an interest in kidding me. I often think of kidding as an “art.” Not literally, of course. What I mean is that it requires the kidder to have a sense of when and when not to kid, who and who not to kid, and the way to kid. That is something Kate hasn’t mastered. What has happened is that she has lost her ability to filter what she says. Fortunately, I am the only one she kids, and I understand that she never means to hurt me. She is trying to be playful in the same way that I have been with her.

That does lead to her kidding me in a way that an observer would interpret as sometimes “mean-spirited.” That is especially true in her comments about our last name as well as my looks. One example that comes up frequently is when she asks my name. If I only give her my first name, she asks for my full name. When I tell her, she gives me a painful look when I say Creighton. She has a strong preference for her maiden name, Franklin, and says something like, “What was I thinking about?” Sometimes she says, “Richard Lee sounds all right, but Creighton?”

It is much more common for her to say something about my looks. Yesterday at lunch, she said, “You know, you’re a nice guy. You’re not handsome, but you’re nice.” She got more specific and mentioned my nose and receding hairline. About that time, a man in a hat walked by our table. I told Kate that maybe I should wear a hat. She said, “That won’t help. If it weren’t for your personality, you would still be living off your parents.” Should I have counted that as a victory?

Kate and Humor

Although Kate enjoys humor, she’s never been a kidder. I grew up with a dad who lived his whole life as a kidder. The week before his 100th birthday and two weeks before he died, a young staff member at his nursing facility asked what advice he had for someone who wanted to live as long as he had. He answered, “Don’t die.” He was a light-hearted guy who saw humor in just about everything. He was even a “cut-up” in the emergency room where we made any number of visits. I tend to be a more moderate version of him. That may be having an impact on Kate right now. I find that she teases me a lot as her Alzheimer’s progresses. Not being a kidder by nature, it often fails to come across as humor though I recognize it as such. I’ve had a few examples of that already today.

Out of the blue at lunch, she said, “Those are the ugliest glasses I have ever seen.” That’s the first time I recall her saying anything about my glasses. Usually, she comments about my nose. That has been something of a family joke. Dad had a moderately bulbous nose that seemed to be more pronounced as he got older. I inherited his nose and have been kidded about that before.

Kate also frequently says, “I’m glad I married you even though you’re not handsome.” As we were driving home from lunch, she said, “I think husbands should be handsome, and wives should be beautiful.” Then she added, “I compromised a little in your case.”

I tend to be careful about running a red light and often stop the moment the caution light appears. Kate has always thought I overdo that. Today, I went through a caution light when I could have easily stopped. I said, “I should have stopped. I could have.” She said, “You shouldn’t worry about it. You’re a good guy.” Then she said, “Who are you?” She wasn’t kidding this time. I told her, and she said, “Who am I?”

That leads to something else she kids me about, my last name – Creighton. She likes her maiden name (Franklin) better. She often expresses this preference when I tell her my name. She passed up that opportunity today. In fact, a few minutes later, she said, “I think it’s a good thing that women take their husband’s names.” I asked her why. That put her on the spot. She didn’t say anything for a moment or two. I could tell she was thinking. Then she gave me an explanation that seemed not to make any sense at all. I said, “So you don’t think it would have been good for me to take your name?” It became clear that I was going too far. She said, “Let’s not talk about this right now. This is getting silly.”

We’re back home now, and she is resting on the sofa across from me in the family room. I have a Chris Botti album on the sound system. It’s a beautiful day though warmer than I would like. It looks like we’ll have a peaceful afternoon.

There ARE humorous moments.

In the car on the way to lunch today, Kate said, “What city is this?” I said, “Knoxville, Tennessee.” A couple of minutes later, she asked again. I said, “Knoxville, Tennessee, where we have lived for 47 years.” She was surprised as she always is when I tell her this. She said, “I guess that means I’m old.” Though I am only six months older than she, I said, “Think about me. I’m 78.” With a smile on her face she quickly responded, “Well, you’re ancient.” She still has her sense of humor.

While we were at lunch, she asked me at least three more times where we were. One of those times was immediately after I had told her. A similar thing happened on the way home after lunch. She asked me to tell her my full name. Right after I said it, she said, “Say it again.” I did and then asked her to say it. She got the first name but was stumped on my middle and last names. She didn’t express any frustration. She just laughed. I laughed with her. Of course, it’s really sad, but it feels good to laugh, especially when she initiates it.

At Lunch

Shortly after we sat down to lunch, Kate looked across the table at me and said, “I’m sure glad I married you.” She paused for a moment. Then she said, “What’s your name?” I told her, and she asked, “What’s my name?”

As we prepared to leave, our server wished me a Happy Father’s Day. I said, “I get a double this year?” She and Kate looked puzzled. The server said, “What do you mean?” I explained that this year it was not only Father’s Day but is also my birthday. Kate’s expressed surprise. She covered her mouth with her hand. Then she looked at the server and said, “You gotta get me outa this.”

At Home to Replace the Sitter

Today was my day to donate platelets at the Red Cross. When I got home, the first thing the sitter said was, “She is so smart.” I said, “I know she is.” Then Mary explained why she said that. She told me that she was watching a TV show with a judge in a courtyard scene when Kate said, “That’s not right. It’s . . .” My Kate, always the English teacher, had corrected the grammar used by someone on the show. Mary added, “And she wasn’t even watching the show. She just heard it.” I told her our grandchildren could tell their own stories of being corrected by Nan. Then she said, “Last week, she corrected me.” I didn’t tell her I have been corrected quite a few times over the years. I love knowing that she is still able to detect errors in grammar.

After Mary left, I walked over to Kate. She said, “I’m so glad to see you.” I said, “I’m glad to see you.” Then she added, “I really mean it. I feel so much better when you are here.” When I had walked in the room, it sounded like the two of them were getting along fine. I said, “But you like Mary, don’t you?” She told me she did, but “it isn’t the same.” I gave her a hug, and she said, “I really mean it.” One of the many things for which I am grateful is that Kate is so loving and appreciative. That strengthens my desire to be the best caregiver I can be. She makes it easy.

After that, she said she wanted to brush her teeth before leaving. As usual, she didn’t even ask about going out, she just assumes when I return we will leave together. So far that is what we have done every time I have come home after the sitter has been with her, never because I initiated it.

In a few minutes, I heard her call me from the back of the house. When I reached her, she said, “Where are we staying tonight?” I told her we were going to stay “right here in our own home.” She said she thought so. I walked back toward the kitchen and heard her call again. This time she pointed to a tube of toothpaste and her toothbrush and asked (using hand signals) if she should bring them with her. I told her I thought we could leave those at home. She said, “I thought so.”

When we got in the car, she asked, “Where are we right now?” I told her we were at our house in Knoxville.” Once again, she said, “I thought so.” She may have, but I know that today she has asked that quite a few times. Obviously, she is not sure. As I have said before, she doesn’t show any signs of frustration when she asks. She seems to be adapting well. Something else to be grateful for.

It’s hard for a caregiver to win every time.

Last week I had someone out to the house to replant flower pots on our front porch and the patio. Since Kate has always handled these things herself, I wasn’t sure how she would take to having someone else do it for her. I decided the best way to approach it was to tell her that this was an anniversary gift to her. While we were in Asheville, the floral person took care of the pots on the front porch. This was just a small step in the process, and I hadn’t mentioned it to Kate.

This morning I noticed some trimmings around one of the pots when I turned off the porch light. As I walked back to the kitchen, I wondered if Kate had started pruning on the new plants. Then I thought that was unlikely. I got more curious as I started to leave for my morning walk and decided to check. As you know doubt predicted, she had been at work, but it was only a partial effort.

The floral person had planted a sky pencil in the center of each of the two pots to the side of the front door with some cascading plants around them. Kate had cut back half of one of the sky pencils so that one half is untouched with the other now half as tall as it was to start with.

I started to say I was frustrated by this, but that really isn’t so. I think of it as a humorous everyday occurrence. It doesn’t have any serious consequences, and it would be a simple matter to replace the whole plant. It’s possible that we won’t even have to do that. I’ll let the expert handle that; however, it’s a good illustration of the little everyday things that a caregiver, at least this one, doesn’t anticipate.

A Humorous Moment

Yesterday morning as I was starting the car for our trip to Panera, Kate opened her door and said, “Wait a minute.” I saw her flip something out of her hand in an underhanded, backward motion. Then she looked back. With a big grin on her face, she said, “It went right in.” She was proud as a child who has thrown a piece of paper rolled into a ball from across a room and into a waste basket. In her case, she had thrown a tissue in the basket she keeps in the garage for all of her used tissues, paper towels, and toilet paper. She uses them to wipe the saliva from her mouth. Yes, she is still not swallowing her saliva.

Whoops!

As I have often said, Kate handles herself well in social situations and has done so since we arrived here in San Angelo. Before she got up yesterday morning, Ken, Virginia, and I talked about how well she is doing. Of course, she slips up occasionally. That occurred last evening when we left our table at the restaurant and moved to an adjoining coffee shop. Ken and I went to the counter to order our dessert while Kate and Virginia selected a table. I should add that we have known Virginia since 1993 when she and Ken got married. Later Virginia told me that Kate said, “How do you know Ken?” Virginia answered, “He is my husband. I am his wife, Virginia.” She said Kate’s face lit up and she said, “I’ve heard your name. I’ve heard such wonderful things about you. I am so glad to put a face with the name.” Although some might focus on the sad aspects of memory loss at at time like this, Virginia celebrated the moment with Kate who was so happy to meet her (again). When Virginia told the the story, I felt the same way.  It makes me happy to know she can experience such special moments.

She had a similar experience when we first arrived on Tuesday. She saw the photo album Ken had sent to her about ten days ago. She went through it two or three times. Each time she experienced it as though it were her first time to see it. Each time she showed Ken and Virginia a page with their wedding picture.

I think Kate’s trying to mimic me.

If you are a regular reader of this blog or someone who knows me well, you are aware that I have a few OCD tendencies (well, maybe more than a few). Kate has never been this way at all. Alzheimer’s has made our differences even more pronounced. Recently, it has come as a surprise to see her exhibiting some of my characteristics. After a long period of time during which she didn’t put up her clothes, she started doing so. She doesn’t always do this immediately after taking them off, but she no longer lets them accumulate on the beds, furniture, and floor as she did in the earlier stages.

The next behavior involves making up the bed. Over the course of our marriage, I recall hearing her say that her mother had taught her to make up the bed right after she gets up. This is something she has always done and continued for the first few years after her diagnosis. Gradually, however, she got out of the habit. Over the past few months, she has started again. She didn’t do it immediately and not nearly as well as she did before, but she was making a good stab at it. Within the past week, I have noticed that she takes more time and is doing a much better job. I’ve even noticed her looking over what she has done and doing a little straightening where she thinks it is needed.

What has been more surprising is her cleaning up at Panera. Their drink dispensers can be a little tricky. It is challenging to fill your cup without some of the drink dripping down the side of the cup and often spilling on to the counter. When this happens, she has started getting a napkin or two and wiping the entire counter, and she does it with as much care as she can. That’s not something she would have done before. In addition, crumbs always fall from her muffin to the table. When we are ready to leave, she has become very careful about getting up each and every crumb.

One final behavior involves a white board on our island. I got it a few years ago to let her know what day it is, appointments we have that day, and where I was if I were not at home. Over time, she stopped reading what I was writing, so I just put the day and date. I finally got tired of that, especially because I could not tell that she was reading it. I bought a digital clock with very large print that provides the same information and the time as well. It sits on the counter across from the island. Now the white board has a single purpose. That is where I put her morning medications. I use that because she can see them easily against the white background.

That was a lengthy introduction for what is a very short story. The other day when she was taking her medicine, she turned the white board at an angle. Then she said, “I keep changing this, and someone else changes it back.” To the best of my knowledge, that is the first time this has occurred, but what struck me was her desire to have it in arranged in a particular way. That seemed to be totally out of character. On reflection, I do recall that she has always had particular arrangements for the knick knacks on furniture or book shelves. Maybe she is just treating the white board in the same way. It’s a Knick Knack on the island. If so, that would make it a normal behavior for her. At any rate, I am leaving it at an angle just the way she arranged it.