Christmas Day

Our Christmas with Kevin and his family went well. We got over to his house shortly after 10:00. Kate was a little slow getting going but got up from the bed when I told her it was time to go. She enjoyed the day. We were there until almost 6:00 p.m. As we were driving back to the Residence Inn, she said it had been a nice day. She seemed to have enjoyed everything.

Back at the hotel, she worked on photos on her laptop until 8:00 when she went to bed for the night. This morning around 5:30, she had a bad dream. I woke her up. She looked up at me and asked, “”Who are you?” I answered, “”Richard.” Then she said, “”Oh, good. Who am I?” I told her, and she said, “Good.” “I wanna go home.” The other morning at Sharon’s house she said something similar, “Are we going home today?” When I told her we were going to Lubbock, she remembered. She remained in bed a while as I held her. In a few minutes, I got up and prepared to go downstairs to the exercise room. Before leaving, she seemed a little unsettled. I got into bed with her and held her again for a while until she seemed calm. Then I went to the exercise room.

After finishing on the tread mill, I dropped by the breakfast buffet to pick up some yogurt for the two of us. As I was doing so, I saw Kate who had brought her computer downstairs with her. I gave her some yogurt and went upstairs to dress and get my iPad. I went back downstairs and got myself some eggs and sausage. We were down there together for about an hour when she was relaxing in her chair with her eyes closed. I asked her if she wanted to go upstairs. She said she would. So here we are. She got right into bed, and I am on the iPad making this journal entry. I am going to let her rest for the next hour or so before we go to Kevin’s house.

Several times since we arrived in Lubbock she has asked about her iPad. Each time I have told her we had left it in Fort Worth. Each time she quickly remembers. She continues to have trouble seeing things. While we were sitting in the lobby, her laptop needed charging. She glanced around the room to locate an electrical outlet. I saw one and pointed it out to her. She got up with her laptop and put it down in the chair beside the electrical outlet. The lamp beside her was clearly plugged into the outlet. She didn’t appear to see the outlet and started looking around on other nearby walls. I pointed in the direction of the outlet, but she still didn’t see it. I walked over to it and showed it to her. She felt “stupid”. And said, “”You’re the only one who would put up with me.” I told her I was not putting up with her but loving her.

Despite these things, I would say the trip is going well, but I wouldn’t be honest if I didn’t wonder if she will increasingly feel more comfortable being at home. I wonder how she will deal with our upcoming cruises.

More Signs of Insecurity and Withdrawal

Last night we attended a choral concert at First Presbyterian. After the concert. they held a reception that we attended. I noticed once again that Kate would just walk away when I was talking with someone that both of us know. As I have noted before, I think this comes from a lessening ability to talk about many things, but I also believe it happens because she recognizes fewer people. She seems to walk away as an escape. At one point while I was talking with someone about the flooding at his house during our recent storm, she took a seat in a chair by herself. Fortunately, someone came over to her and they engaged in a conversation. Then it was time for us to go. As we left, Kate asked who that was she had been talking to. She did recognize her as a friend of Ellen’s. I suspect the person may have mentioned Ellen in the conversation. Then as we walked out of the church, she put her arm around my waist and said, “I need you.” I said, “And I am right here.”

Yesterday afternoon Kate worked in the yard. I called her in about 45 minutes before I felt we needed to leave for dinner and the concert. I had told her a little earlier where we were going. I reminded her when I went out to get her. When she got dressed, she was dressed more informally than I thought she should. She asked me if she met my approval. That led into a comment or two about where we were going. She hadn’t remembered at all. When I reminded her, she felt she should change. Even though I believed she was dressed too informally, I told her she was all right. She could tell my heart wasn’t in it. Ultimately, she changed, but the top she was wearing was soiled in several places from cosmetic stains. Later I noticed that her slacks were also soiled.

That reminds me that something new is that she is beginning to make a habit of asking me about the clothes she wears when we are going to something a little more special like last night. She did not do so last night, however. It is clear that she is releasing her independence a bit by soliciting my opinion on her clothes.

She also commented to me this week that she wants to please me. This came after she had gotten ready on time when we were going someplace.

Sleepy This Morning

Kate and I are staying in a B&B in Arkansas, where we are staying in connection with a wedding of Kate’s cousin’s granddaughter this afternoon at 4:00. We got to bed around 10:30 last night. Kate has had a hard time getting up. I started waking her up just before 8:00. I finally went down to breakfast at 8:30. I came back, and she was still in bed. A while ago I told her we needed to leave.

She is just now getting up. Now I need to finish getting ready myself, but I wanted to note that I am observing more signs of her being worn out. This seems to happen when we are out of town and stay up later than usual. She also didn’t have time to rest much yesterday afternoon although she did take a 20-minute nap/rest.

Revealing Comment

Kate and I are in Memphis sitting at a table at Otherlands, a popular coffee shop. She is working a jigsaw puzzle on her iPad. I am checking in on Facebook and email and responding. She just looked up and me and said, “You going to have to take out an ad in the paper saying that  “my wife needs a friend.” The loss of close friends is clearly a problem, one I have mentioned before, but this “out-of-the blue” comment illustrates her own feeling about not having anyone she can call a friend – at least one who is in town. I am glad that we were able to have lunch with Ann and Jeff when we passed through Nashville two days ago. It will also be nice to spend a few days with Dorothy and Mitch Hinely this coming weekend. In addition, the time spent with Jesse and her boys has been therapeutic as well. I am thinking about making more of an effort to travel here during the week in the months ahead.

I feel that we may only have as little as a year before it may not make much of a difference; so I should capitalize on the period of time when it matters most to her.

Deja Vu Experiences

It has been a while since I have mentioned it, but Kate continues to have Deja vu experiences. For example, yesterday or the day before, we were driving on our way to church.  We saw two women walking on the sidewalk. She pointed out that she has seen them before walking along about “this time.” Of course, it is really doubtful because she doesn’t have a car, especially this time of morning. A little later she saw someone else and said she had seen him before. At Panera in the past few days, she has pointed out people she has seen before. This even happens in places where we have not been before. I never challenge her or tell her she couldn’t have seen them before. There would be no purpose in doing so, and it might hurt her. It is amazing how natural it is to want to correct someone. It requires self-control. Once in a while, I find myself failing in this respect.

These kinds of experiences make it clear to me that Alzheimer’s not only affects the memory but also other aspects of the brain. Another example of that occurred yesterday. When I arrived home, I discovered that she had brought in the garbage bin from the street after the garbage had been picked up. She had left it out instead of returning it to the garage where we keep it. When I looked in it, I saw that she had put yard trash in it, something she would not have ordinarily done before Alzheimer’s.

While at the office yesterday morning, I called our former dentist, Hank Noble, to see if we could get together again. It has been several months since we last did so. We talked about 20-30 minutes and set a day next week to meet for coffee at Eggs Up. I had a feeling that I had gotten the very first time we talked. He is suffering much more than I am. He says he is getting along well but then what he says lets you know he is troubled. He told me that he was having difficulty making himself do little things like write checks to pay bills. Another friend told him that he was depressed. Hank said, “I don’t feel like I am depressed, but I guess that is what it is.” Another indication of his depression is that he said he needs to begin thinking about possible arrangements with some kind of facility for his wife. He said that he hasn’t been able to make himself think about it as though if he doesn’t think about it, it will go away.

He asked how we were doing. When I told him about our having had good trips to Switzerland and New York and that we had gone paragliding in Switzerland, he was amazed. He expressed a touch of envy that we were getting along so well. I will have to be very careful in our future conversations not to make him feel badly about this. I did tell him that our time is coming, that we had been very fortunate, and that both Kate and I often talk about how grateful we are for our circumstances. He reiterated how fortunate he and his wife are that that have the financial resources to provide the care that his wife needs. He has had 24/7 care for 8-12 months or so. His wife can’t walk on her own and cannot feed herself. He indicated how hard it was for him to look across the room at his wife with her head slumped toward her breast much like we envision those in nursing homes. He says he sometimes just has to get up and leave the room. He misses conversation with her. He had told me that the previous time we spoke.

I plan to stay in touch with him even though I don’t feel he is in a position to provide me a great deal of support. I feel I will be able to help him more than the reverse. There is another way to look at it, however. I draw strength from people whenever I am around them (most people at least). It isn’t necessary for him to express any special concern or support for me to benefit or be strengthened. Just having another person to talk with will help me down the line. I am thinking about the time when Kate has progressed much further than she has now. At some point, his wife will pass away. At that point, he may not feel the need to get together.

Trying Movies at Home

I started the movie, Dreamer, about 35 minutes ago. We were watching, and I thought enjoying it when she said, “I’ll be right back.” I took the opportunity to get ready to take a shower. I looked outside, and she had gone out there. She went out to look for the night guard she lost.

A Visit With Out-of-State Friends

Debbie and Bruce Morton (a TCU roommate) visited us yesterday after spending two days with friends in Nashville. Kate’s memory of them was sketchy. We hadn’t seen them in a while and was a little uneasy about the visit. When they left, she talked about how much she had enjoyed the visit. She got along quite well. I noticed a few little things that the Mortons would not have noticed. David told me he and Vicki were surprised at how well she is doing. These are two common things about visiting with friends. Kate is often a little hesitant about getting together with people she doesn’t remember. The other thing is that everyone always is struck by how well Kate seems to handle herself. They often say, “If I hadn’t known, I would not have suspected she has Alzheimer’s.”

Last Day In Interlaken

Yesterday was another special day. We went paragliding. I had planned for us to make a day trip to Bern, but I had been watching the paragliders float down to the Village Green since our arrival on Monday and wanted both of us to try it. Wednesday night I began to think of paragliding and saving the trip to Bern for the time we are in Zurich. That is what we did. Kate was also interested and never expressed any reservations. It turned out to be a wonderful experience. Each of us went with a separate pilot who asked if we wanted “to do the roller coaster.” What a thrill that turned out to be. Paragliding could well be the highlight of the trip.

One of the behavior changes I have observed in Kate over the past year or so is the use of very large amounts of parmigiana cheese on her Italian food. Last night for the first time, I observed an extreme form of this. After her ravioli was gone, she simply picked up a spoon and ate several spoonfuls directly from the bowl. I did not tell the waitress about this but she could see that it had spaghetti sauce in the bowl with the cheese. Someone had told me she used to carry a card to give to the waiters telling them something that would explain any unusual behavior on the part of her husband who had dementia. I can easily see the need for this in our future.

Something else that I am more mindful of is her need to rest. Although she seems to do well when we are out for long periods of time as we have been the past 3 days, she grabs every chance she gets to lie down. For example, after taking her shower this morning, she immediately got back into bed. She got up in 15-20 minutes and got dressed for breakfast? When we returned to the room, she got back into the bed where she remained for 20-30 minutes. We both packed for our trip to Lucerne and were about to go to the lobby to pass a little time before leaving when she decided to rest a little before going. She is now in bed under the covers.

Day 3 In Interlaken

I am washing clothes at a laundromat and happy to report that things are going quite well. We have had some rough edges but nothing that has put a damper on the trip. It has meant that at times I have felt frustrated. Two issues: Confusion and Rushing. Kate is unable to do or figure out so many things that I am always trying to see that she gets what she needs. For example, I gave her a ticket for our train trip to Schilthorn yesterday. It has a bar code. You stick the card in a slot, and it is scanned. I showed her where to put the card, but she did it incorrectly two times. She gave it to me and asked me to do it. This is something I should have known and handled without her asking. It seems like I am invariably assuming that she can do things that she can’t do. This frustrates both of us. The hard part is that she doesn’t want my help on most things; so I try not to give it. Then we both discover that I should have helped.

I, of course, correctly attribute this to her AD, but it does not appear that she does. I am not sure this is correct. All I know is that her frustrations in moments like this are with me and not herself.

As expected, I am having to be more careful not to lose her. There have been several instances in which she was momentarily lost. She doesn’t like for me to hold her hand. That would be one way to insure that we stick together. What I do is try to walk beside her or to look back instead of ahead.

One reason that things have gone as well as they have is that we have not been under pressure to meet deadlines. For example, when we have traveled to Jungfrau and to Schilthorn we could simply take the next train or bus rather than worrying about having to be at the station on time. We have been able to do a lot, but we have done it leisurely.

As of this moment, I would say the trip is what I had wanted it to be.

Recognition of Short-term Memory Problem

Yesterday as we were walking to our car from church, we stopped to talk with a couple. When we had finished, Kate asked me who they were. I told her their first names. Before I could say the last name, she said their last name. Then she said, “My memory is shot.” She clearly recognizes what is happening. I hate for her to suffer in this way, but I think it will be even worse for me when she is not aware.

At 6:00 last night, I went out to let her know it was time to come in so that we could go to dinner. She got up (she was on the ground) right away and started to follow me back to the house. I went inside. After 15 minutes, I hadn’t heard her come in; so I went outside and saw that she was working in a flower bed in the back of the house. It turns out that she hadn’t remembered that she was coming inside to go to dinner.

She came in and took a shower. In a little while she walked into the family room dressed for bed. I asked if she had changed her mind about our going out to dinner. It turns out that she hadn’t remembered that. She changed, and we went out to eat.