In my previous post I commented on Kate’s less-than-cheerful mood and a change in her conversation. She just hasn’t been talkative lately. That changed yesterday. I wish I could remember exactly what she said, but I can’t. All I can tell you is a summary of what happened.
She was up about 7:30 and went to the bathroom. This was a day when she wanted to express her independence. She didn’t want my help. I walked her to the bathroom. Then I went back to the kitchen where I could watch on the video cam to see when she had finished. After a while, I hadn’t seen her and wondered if she had come out without my noticing. Then I heard the shower. I was happy about that since she was due for one. I also knew that she would want to return to bed afterwards. That would give me a little time to take care of a few things I needed to do. It wasn’t too long before she was in bed again.
From past experience, I knew that she could easily sleep another couple of hours, but I kept checking the video cam. (In case you wondered, my iPad with the video sits to the right of my computer.) At 10:45, she had shown no sign of getting up. I went back to wake her. When I approached the bed, I saw that she was awake and asked if she would like me to take her to lunch. She gave me a confused looked as though she wasn’t sure who I was.
When I sat down on the bed, I said, “I’d like to take you to lunch.” She said, “Where are my clothes?” I always put them on the chair about three feet from her side of the bed, but she can’t remember. I pointed and told her where they were. Then she said, “What do I do now?” I told her she should get dressed. As I helped her into a sitting position, I noticed that she looked frightened. She said, “I sure am glad to see you.” On one or two other occasions, she has been awake but didn’t get up because she didn’t know what to do or where she was. I quickly assumed (correctly) that was what happened this time. She was shaking as she talked. She said, “I didn’t know what to do.” Then I felt terrible for not checking on her earlier, something I will watch more carefully in the future. I apologized and told her how bad I felt. When I did that, she immediately tried to ease my guilt. She said, “Well, it’s going to be all right now? <pause> Isn’t it?” I nodded, but she wanted me to be more affirming and again said, “Isn’t it?” I assured her it was. She still appeared to be shaken by the experience.
Unlike her earlier desire to assert her independence, she wanted me to guide her through every step she needed to take to get ready. She was too emotional to think straight about everything she needed to do. On a normal day she has difficulty, but the emotional experience she had had exacerbated the problem. Several times she reiterated how scared she had been.
On the way to, during, and after lunch she was quite talkative. While we were eating, we had a conversation similar to one I reported on a couple of weeks ago. The first one involved Christopher Columbus. She asked who he was. I tried not to get into anything too overwhelming for her to understand. She asked questions about everything. That meant it did get too complicated for her, but she was still eager to know more. I had to repeat just about everything two or three times without her ever getting it, but she was interested anyway. Somehow the conversation drifted to food that was in the New World and introduced into the Old. I Googled a list of such items and read them to her. She was like a little child discovering something she had never thought about. She couldn’t believe they didn’t always have things like potatoes or corn in Europe before then.
The next topic was World War II. She started this one when she brought up the topic of discrimination. I mentioned the Holocaust and Hitler. We didn’t get too far on that one because she got too emotional. She was both interested and shocked. She is more emotional now and starts to cry at both happy and sad things she hears about.
We got home a short time before the sitter arrived. I didn’t tell Kate that Mary was coming. I just let her in. Kate welcomed her. I told her I was going out for while. She said, “We’ll be fine.” Once again, I left with a good feeling. When I returned, they were sitting in the family room talking happily.
After Mary left, we went to dinner. When we returned home, we sat down in the family room. Ordinarily, I would watch the news while she works on her iPad. She had been in such a good mood that I didn’t want to break it by watching the news. I turned on a Barbra Streisand album as Kate started to open her iPad. The first song I selected was “Send in the Clowns.” It has always been a favorite of hers. Instead of working a puzzle, she put the iPad down and just listened. Then I to selected a number of others that I knew or thought she would like. We sat there together for an hour just enjoying the music. She loved it. I did as well, but the real treat was sharing such a happy moment together. I feel fortunate that we can have moments like these, especially this late in her disease.