None of us escapes change. It’s all around us. For those of us living with Alzheimer’s it’s the same. The difference is the source of those changes. In our case, it’s the plaque and tangles that keep growing inside the brain. We’ve learned to expect some changes. Others are unexpected. Regardless, we adapt.
Our weekend trip to Nashville causes me to reflect on a minor change that I experienced in connection with travel. By itself, it is really unimportant, but it is illustrative of the required adjustments that we continually face. It relates to my personal morning routine.
I have always gotten up earlier than Kate. I also like to eat breakfast shortly afterwards. It had been my custom to get up, shave, dress, and go to breakfast while she slept. I have followed this same routine when we are traveling. In the rare event that she woke up before my return (I’m not aware that it ever happened), she understood where I was and didn’t worry. I felt there was no reason to hurry, so I left with my computer or iPad and took my time getting back to the room. Later on, I began to be concerned that she wouldn’t remember where I was. I started leaving a sign that said I was at breakfast and would be back soon. In addition, I took the words “back soon” seriously and didn’t stay any longer than necessary to eat breakfast. I ate quickly and went back to the room. When we are in Lubbock we stay in a Residence Inn where they have a buffet. I request a room on the first floor so that I can get to breakfast and back easily and also take something for Kate. That has worked well for quite a while.
Saturday night in Nashville we stayed in a Marriott and were on the fourth floor. My concern about leaving her has increased significantly during the past few months. Before making the trip, I decided that I would request room service so that I didn’t have to leave her at all. For me, that represents quite a change. Eating breakfast in the semi-darkness of a hotel room is not my idea of the best way to enjoy breakfast. The only other time I recall ordering room service was in 1976 when our family was in Medellin, Colombia. Our children were 7 and 5 at the time, and I am sure that was motivated by convenience.
As I look ahead, I believe our travel is coming to an end. We do have a trip scheduled for Thanksgiving with our son and his family. In that case, our room is likely to be on the first floor again. That should enable me to slip to the buffet and bring breakfast back to the room.
This is hardly the most serious problem involved in our travel. lf it were, I would happily go without breakfast at all (if necessary, of course <g>). The most serious issue is losing her. That has happened several times. Another is getting through airports. Going through security is more challenging. Use of restrooms is another. Regardless of how serious the potential problem, each one requires changes from the way we used to do things.
As I mentioned at the beginning of this post, much in life is changing, and all of us are adapting. There is a significant difference in caring for someone with dementia, and I am reminded of the words of the serenity prayer. “God, grant me the serenity to accept the things I cannot change, courage to change the things I can, and wisdom to know the difference.” As caregivers, we cannot change many of the things we face. That leaves us only one option. We must do the changing ourselves. Those for whom we care cannot.
