An Example of Kate’s Rational and Intuitive Thinking

Shortly after 7:00 this morning, I looked at the video cam and noticed that Kate was up. I went to the bedroom just as she was coming out of the bathroom. She gave me a nice smile. I hugged and greeted her. Then she got back in bed. As I was about to leave the room, we had this brief conversation.

Kate:              “Where are we?”

Richard:        “In our home in Knoxville.”

Kate:              “It’s nice.”

Richard:        “Yes, there’s no place like home.”

Kate added: “With you.” <pause> “What’s your name?”

I didn’t try to determine if she knew that I am her husband. Based on recent experience, I would say there was a 50/50 chance, but her intuitive ability enables her to respond to me as someone she recognizes and cares about. Something very similar occurred last night when we went to bed. She moved close to me and put her arm across my chest. She said, “I love you. Good Night.”  Then she asked my name and hers.

Losing Two “Old Friends”

Like other people with dementia, Kate’s memory is progressively worse all the time. At the time of her diagnosis, we were told that she would remember the things that were most important the longest. I’d say that’s the way it has worked out. This week I have seen the signs that two of her favorites are now dropping from her memory.

One of those is Willie Nelson. I think her fondness for him relates mostly to the fact that he’s a Texan. For years, her eyes have brightened at the mention of his name. Recently, that has been replaced by a question. “Who is he?” I don’t mean that he is completely forgotten. I expect there will be other times when she responds the way she used to; however, the fact that she hasn’t known a few times suggests that his name is gradually receding from her memory bank.

Willie hasn’t been nearly as important as something else in Kate’s life – Dr. Pepper. That’s a popular drink in Texas and with her family. Her cousin played an important role in the establishment of the Dr. Pepper Museum. She has a variety of Dr. Pepper memorabilia at our house. It has been her preferred drink for as long as I have known her. That is now changing.

She has always been particular about the mixture of seltzer to syrup when she gets a Dr. Pepper from a fountain like they have at many self-serve locations. She likes it to match what she gets in cans. Over the past year or so and especially the past few months, she hasn’t liked the Dr. Pepper she is served in restaurants. She has asked me to taste them, and I can’t tell any difference. Although I am not as sensitive as she is, I believe it is her taste that is changing and not the drinks themselves.

The big surprise, however, came last night when we went to dinner. As she got out of the car, she said, “What am I going to have to drink?” I don’t recall her ever asking that before, especially before we have entered the restaurant. I told her they probably had Dr. Pepper and, if not, she could have her half-sweet and half-unsweetened tea. She said, “What is Dr. Pepper?” I was shocked. That was the first time she has failed to recognize her favorite drink. When the server asked what she would like to drink, I looked at Kate and said, “Dr. Pepper?” She gave a frown. I told the server to bring her iced tea.

It may seem a bit trivial to others, but I look at this as yet another marker on this journey.

A Taste of This Morning’s Conversation

At almost 9:00 this morning, I saw that Kate was getting out of bed. I went to her and asked what I could do for her. She asked me to get her clothes. I asked if she wanted to take a shower first. She did, and we walked to the bathroom. As I started to get the shower ready for her, she took off her night gown, and we had the following conversation.

Kate:              “What is your name?”

Richard:        “Richard.”

Kate:              “What’s your full name?”

Richard:        “Richard Lee Creighton.”

Kate:              “What’s my name?”

Richard:        “Katherine Franklin Creighton.”

Kate:              “That sounds right. And who are you?”

Richard:        “I’m your husband.”

Kate:              “Noooo.”

Richard:        “Let’s talk about that later. Why don’t you take your shower now.”

Kate:              (Getting into the shower) “Who are you?”

Richard:        “Do you think I’m a friendly guy?”

Kate:              “Yes.”

Richard:        “I’m your husband.”

Kate:              (Puzzled look) “Okay. <pause> What’s your name?”

Richard:        “Richard Lee Creighton.”

Kate:              “What should I call you?”

Richard:        “Richard.”

After her shower, she went back to bed for about forty-five minutes. Then she got up to dress. She didn’t ask my name or who I am. She acted as though she knew. I wanted to ask but didn’t. I think she knew.

Another Day of “Happy-Sad” Moments

For the second day in a row, Kate got up early. I was especially glad because she had a 10:30 appointment with her ophthalmologist. It was her final follow-up visit after her cataract surgery. I planned to wake her about 9:00. I knew even that might cause her to rush. I also assumed we wouldn’t have time to get her a muffin before the appointment. It turned out we didn’t need to rush at all. She got up at 8:00. That enabled us to stop by Panera for her muffin and work a few jigsaw puzzles before hand. We were early enough to see several people in the Catholic group that comes regularly after morning mass. It has been several months since we have seen the Baptists who have Bible study on Tuesdays from 9:30 to 10:30. I have heard indirectly that they have been asking about us.

The good news about the doctor’s appointment is that she said Kate’s eye had healed nicely. She also removed a stitch she had put in to protect the implant if Kate had forgotten she wasn’t supposed to rub her eye. That turned out to be a good plan. Testing her eyesight is almost impossible. Although she tested at 20/50 a month ago, she didn’t do as well two weeks ago. Yesterday was even worse. It is hard for her to know how to follow instructions and where to focus. They finally took her to another room where they were able to test her through digital technology.

Yesterday afternoon, we drove to North Carolina, to attend a show at the Flatrock Playhouse. On the way, Kate repeatedly asked where we were and where we were going. At this stage of her Alzheimer’s, it is simply impossible for her to remember things like this. Her brain won’t “allow” it. We also had one of those conversations in which we talk about about our marriage, our families, and the many experiences we have had followed by her asking my name and her name. As usual, she asked without any sense of frustration or concern. She just wanted to know. I never mind her asking. It’s those times she is troubled by not knowing that bother me. We had one of those later in the evening.

We made this trip at the invitation of a couple we know from Casa Bella. We have attended one other show at the Playhouse with them in the fall. Kate, of course, never remembers them, but she enjoys being with them. They are friendly people, and she feels comfortable with them. Last night’s performance was the comedienne Jeanne Robertson. This was the first time time in our marriage that we had attended a performance by a comic other than as part of a variety show on a cruise. Kate doesn’t generally take to comedians, and I was worried that she wouldn’t enjoy her. Before accepting the invitation I looked at a couple of YouTube segments of some of her other shows and decided it was worth a chance. I’m glad I did. Kate thoroughly enjoyed it. I am sure she didn’t understand much of it, but a good comedian is successful for much more than the exact words. She enjoyed it so much that I was a bit surprised when we saw Robertson in the lobby talking with others who had attended, and Kate had no idea who she was. That was true even after I explained that she was the one we had seen on stage in the auditorium.

As we walked to dinner and from dinner to the Playhouse, Kate whispered to me, “Where are we?” She repeated her question a number of times as well as when we went to our hotel for the night. When we got to our room, she said, “I sure am glad I’m with you. I have no idea where I am.” That was the beginning of a lengthy conversation that continued off and on for about an hour. She said, “I want you to know how much I appreciate what you do for me.” I told her that everything I do for her is because I love her. She was a bit teary but never broke into a full cry.

During the early part of the conversation, it sounded like she understood that she has Alzheimer’s. She said things like, “You’re the only one who knows what I am going through, and I even have trouble remembering your name. I do sometimes, but . . .” As she talked a little more, I learned that she was disturbed because she has lost “so many of my family.” She was worried that she had not done enough for them. I tried to encourage her. I reminded her of the way she had cared for her mother and how good we both felt about having her in our home the last years of her life.

On this particular trip she seemed to be less at ease in a strange place than at any other time. I’ve been looking for this on our previous trips but haven’t observed it. I’m not even sure about this one, but a few times she said, “I’ll be glad when we get home.” One of the reasons it is hard to determine if it is uneasiness about being in a strange place is that she sometime says the same thing when we are at home. In those cases, I don’t know if she thinks we are in Texas and wants to go to Knoxville or if she understands we are in Knoxville and wants to go home to Texas.

When I got ready to shower, she asked if it would be all right if she worked on her iPad. I told her that would be fine. She said, “Are you sure?” I told her this was a time she could relax and do whatever she wanted. I reminded her that we had no commitments in the morning, and she could sleep as late as she wanted.

It wasn’t until we turned out the lights and were in bed that she said, “Thank you. I’m beginning to relax now.” She continued to talk for a while. Then she drifted off to sleep. She slept until 5:00 this morning when she got up to go to the bathroom. When she got back in bed, she wanted to know “Where are we?” I told her, but she asked several more times. It took her a good while to get back to sleep. It is now 9:45. She is still sleeping soundly. If she doesn’t wake before, I will get her up around 11:00 so that we can get home early in the afternoon.

Considering everything, it was a very good day. She was in a good humor and enjoyed herself. She seems comfortable with the friends who invited us and loved the show last night. What more could I ask this long after her diagnosis? We continue to have good times. How fortunate we are.

A Day of Uplifting Social Experiences

At 9:40 yesterday morning, I saw on the video cam that Kate was up and walking back to bed. I went to her and discovered that she had gone to the bathroom next to our bedroom. I said, “I see you’re up.” She said, “For the moment.” She pulled back the covers and got back into bed. She said, “Is that all right?” I said, “That’s fine.”

An hour later at 10:45, I brought her clothes to her, and we had the following conversation.

Richard:        “Today is a special day. It’s your daddy’s birthday.”

Kate:              (She smiled.) “What’s his name?”

Richard:        “Carl Franklin. He was a good man and he loved his little girl.”

Kate:              “Who are you?” (In a very natural, conversational tone)

Richard:        “Before I tell you, do you recognize me?”

Kate:             “Sure. You have a nice voice. I know other people tell you that.”

Richard:        “I’m Richard Creighton, and I’m your husband.”

Kate:              “How did we meet?”

Richard:        “We met at a friend’s house on a Sunday evening in September, 1960.”

Apart from her memory loss, she was very relaxed and seemed just fine. She expressed no uneasiness about not knowing my name or my being her husband.

When she was ready, we went to lunch. On the way, she asked me where we were four or five times and several times on the way home. We had a very pleasant lunch at Carla’s. We hadn’t seen the hostess in a couple of weeks. I asked where she had been. She told us that she and her siblings had moved their mother from Guam where the family had grown up. During our meal, an acquaintance took a table next to ours. She was meeting friends who had not yet arrived. She sat down at our table and we chatted until her friends arrived. We don’t know her that well. She is French but spent most of her youth in Egypt where her father was a dentist. It was nice getting to know her a little better.

Although we eat lunch there almost every Tuesday, Kate commented on the restaurant as though she had never been there before. They serve gelato that we both love, but she never remembers that. It seems like her sense of taste is not nearly as strong as her other senses. <g>

When we returned home, Kate asked me what she “could do now.” I told her we could go into the family room where she could work on her iPad. She said that would be fine. She wanted to know where she should sit. I pointed to a chair and told her she usually sat there so that she could look outside to the back yard. I put her iPad on the chair. She walked over, picked it up and said, “What’s this?” I told her that was her iPad. I took it from her and said, “Let me show you what you can do with it.” I opened the cover and touched the icon for her puzzle app. As it started to load, I said, “Now watch what happens.” I showed her a selection of puzzles of flowers and said, “When you touch one of them, it will break into pieces that you can put together.” She looked amazed and said, “That’s neat.” It was as if she had never seen it before. It is hard to believe this is possible when she spends as much as 6 hours a day working such puzzles.

While she was working on her iPad, I tuned into a station featuring the music of Frank Sinatra and other singers of his period. The first song was “New York, New York.” I can’t remember the last time we heard that song, but she recognized it before she heard the first words. A little later, we heard Rosemary Clooney singing “Mambo Italiano.” She chuckled in recognition as it played. I said, “This is ‘Old-fashioned’ music. She said, “I love it.” As much as I’ve observed the power of music for her, I was still taken aback by how quickly she recognized these old songs when shortly before she hadn’t even remembered what her iPad can do.

After a while, I suggested we go to Barnes & Noble. She liked the idea. I was happy about that. I felt it would be good for both of us to get out of the house. That worked out well. We had conversations with two different people. One is a member of our church who meets with a group of other men each Tuesday afternoon. The other is a young woman who tutors students there almost every weekday. We often chat with her in between or before her students arrive.

Kate began to have problems working her puzzles, and I suggested it was a good time to break for dinner. We went to Bonefish Grill where we know the hostess and several servers who speak to us even when they are not serving us. It is the only restaurant we frequent where we don’t have just one server that we request each time. That has made for an added bit of social activity when we dine there – even when we don’t see other people we know. Before taking our seats, Kate wanted to go to the restroom. I walked her to the door and walked back to my seat where I could see her when she came out. The servers look out for her as well. Last night our server was walking back to the kitchen when Kate came out of the restroom. She walked Kate back to our table. Eating out turned out to be another social experience for us.

As we were winding down the day at home, our son Kevin called. It was nice way to end our day.  It was a good day. That doesn’t mean there was any improvement in Kate’s condition, but I felt we had a day of more uplifting experiences than some recent days. That keeps us going.

A Rocky Start with a Nice Finish

Yesterday morning I had two surprises. I was happy about the first one. Not so for the second. First, the good news. I saw on the video cam that Kate was up, and it was about 8:00. I always like it when she gets up without my having to wake her. That is especially true on a day that we have a sitter. That insures that I don’t have to rush her before the sitter arrives. It’s even better on Monday because the sitter comes at noon instead of 1:00.

When I got to the bedroom, she had just come out of the bathroom. She seemed alert and showed no signs of confusion. I asked if she was going to take a shower. She said she was. I knew that she would want to rest a while after her shower, but I also knew that we had plenty of time and still might be able to get to Panera for her muffin, something that is a rarity these days. As expected, she got her shower and went back to bed.

A few minutes after 10:00 I decided to get her up. That’s when I received the second surprise of the morning. She wasn’t asleep, but her eyes were closed. I asked if she would like me to take her to get a muffin. She gave me a strange look. She wasn’t the same alert Kate I had greeted earlier. She was clearly confused. When I said that I had her clothes out and would help her get dressed, she looked at me sternly and said, “Who are you?” I gave her my name and told her I was her husband. She was surprised. That is not unusual; however, she was obviously uncomfortable and pulled the covers up to her neck. I said, “You do recognize me, don’t you?” She didn’t and didn’t want me to help her dress. This was totally unlike any of our previous experiences. There wasn’t any way that I was going to explain this.

I didn’t push her. I told her I thought I could help her and got her “Big Sister” album. I showed her the photo of her and her brother on the cover. She didn’t show any sign of recognition until I pointed to her picture and said, “Who do you think this little girl is?” She hesitated and then said, “Me.” I turned to the first page and showed her a photo of her with her mother and daddy. Then I turned to a section that has a few of our wedding pictures. She didn’t remember anything.

I decided she just needed a little more time. I told her I wanted to take her to get a muffin. She asked about her clothes. I showed them to her and suggested she get dressed. By this time, she was beginning to feel more comfortable with me, but she still did not believe I was her husband. She did, however, let me help her dress.

When she was dressed, she noticed a wedding picture of our daughter, Jesse, on the dresser and said, “Who is she?” I explained that she was our daughter. She walked over to it and asked if she could take it with us. I told her she could. She asked where she could keep it. I told her this was our room and that she could keep it right there on the dresser if she liked. She still wanted to take it with her.

In the car on the way to Panera, I said, “You seem like you’re feeling less confused now.” She acknowledged that she was and said, “What’s your name?” I said, “Richard Lee Creighton.” Then she asked me her name. I said, “Katherine Franklin Creighton.” She frowned when she heard “Creighton.” I didn’t say anything.

When we got closer to Panera, she asked my name again. I told her and added that I was her husband. She wasn’t buying that. After we had been seated a while, she asked my name. I told her and said that I was her husband. She didn’t believe me. Again, I didn’t push.

We had been at Panera about forty minutes when I thought we needed to get home for the sitter. On the way I reached out my hand and touched her leg and said, “I love you.” She put her fingers to her lips and blew me a kiss and said, “I love you too.” I took that as a sign that she had finally recognized who I was.

The sitter arrived a few minutes after we were home, and Kate seemed perfectly normal. I said I was going to Rotary, and she said, “What are we going to do?” I told her that she and Cindy could go to lunch at either Applebee’s or Panera. She said, “Why don’t you go with us?” I explained that I needed to attend my meeting. She didn’t seem to mind that, but I was glad to see that she would have felt even better if I had stayed.

When I returned home, I was pleasantly surprised to see that Kate and Cindy were having a conversation in the family room. Kate seemed to be taking the lead. Cindy said they had gone to Applebee’s for lunch and come back to the house. She said Kate had not worked on her iPad at all and that they had been talking the whole time. That was another surprise and a welcome one. I was happy for two reasons. First, that she hadn’t had a nap. Second, because she was able to engage in conversation for such a long period of time and that she was doing a lot of the talking. I want Kate to develop a strong relationship with her. This was a dramatic contrast with her confusion this morning. I felt much better.

The rest of the day went very well. We spent about an hour and a half at Barnes & Noble and then went out for a Mexican meal at Chalupas. She spent the rest of the evening working on her iPad while I watched the news. Then I turned on a series of YouTube videos for her. Several times she needed help with her puzzles, but she seemed to get along well after that. When I told her it was bedtime, she was very cooperative. She slept through the night and is still sleeping as I finish this post at 7:30.

A Day of Ups and Downs

Kate’s confusion in the morning continued yesterday. The good news is that she wasn’t at all irritable. She just didn’t know who she is, who I am, or where she was. She was sleeping very soundly when I went to get her up. I really hated to wake her, but I knew we needed to get to lunch and back before her massage at 2:00. I wanted to allow plenty of time to avoid rushing her.

As I expected, she didn’t want to get up, but she did so very cooperatively. She was confused. She looked out the bedroom window as she does each morning and didn’t recognize where she was. Then she said, “Who are you?” I told her I was her husband. She was puzzled. I didn’t try to explain. I simply suggested that she take a shower and that we could look at some pictures I thought would help her. Again, she was cooperative.

She wanted to rest a while after her shower. That is not unusual at all. We had time, and I told her to go right ahead. After thirty minutes, I went back and helped her dress. When she was ready, I took her to the family room and showed her the “Big Sister” album. She immediately took to the cover photo of her and her brother. I asked if she knew who they were. She pointed to her picture and said, “Me.” She also recognized her brother. I find it amazing how a photo can begin to bring back memories. It is something that her intuitive abilities enable her to do. We opened the cover and looked at the first few pictures. She connected with them very quickly. Her sense of confusion was lifted.

I suggested we go to lunch and come back to spend more time with the album. She asked if she could take the album with us. I told her she could. When we got to the restaurant, she asked if she could take it inside. As I was about to suggest that she leave it in the car, she said, “Maybe I should leave it here.” I told her that sounded good to me.

It’s been over a month since Kate’s cataract surgery. It has definitely improved her vision – at least in some ways. I notice that she tries to read more than she did before. By “read” I mean to read a headline in a magazine or signs she sees wherever we go. Occasionally she makes an effort to read an article in a magazine, but the font is almost always too small for her. The major problem is not her eyes. It’s her Alzheimer’s. That was evident at lunch when I asked if she was going to eat her sandwich. She said, “Where is it?” This, too, is not unusual. She frequently fails to notice food that is on her plate. Once I pointed it out to her, she took a bite and put it down. A few minutes later when she hadn’t taken another bite, I asked if she wanted the rest of her sandwich. She asked me where it was. I believe part of the problem has nothing to do with her sight. I say that because she seems to locate most of the fries. I notice something similar when she has salmon and sweet potato fries at the Bluefish Grill.

It was noisier than usual at lunch. We were seated near a group of twelve on one side and eight on the other. Noise always bothers Kate. She was especially sensitive to that yesterday. She was in a generally good humor but annoyed by the chatter coming from both directions.

When we got home, we had about forty minutes before we needed to leave for her massage. She wanted to know what she could do. I suggested we sit on the sofa in the family room and go through the “Big Sister” album. She enjoyed that a lot but needed help identifying everyone. I think most of the problem is that people don’t look the same in photos taken at different times. Her Alzheimer’s also plays a part. For example, in a picture of four people standing side by side, I could help her identify the person on the extreme left. Then I would tell her the name of the person standing next to him. She has a tendency to skip that person and see the person to the right of him. That occurred several times even when I had my finger on the photo of the person. It’s not something I can understand. I just know it happens.

It wasn’t long before it was time for Kate’s massage. I left her there while I waited at Whole Foods which is a couple of doors down from the spa. When I went back to get her, she was sitting in a chair in the waiting room. She said, “Boy, am I glad to see you. Let’s get out of here.” It is always hard for her to explain how and why she feels a certain way, but I gathered that she was very confused about the whole process. She didn’t know what was going on when the therapist put her hands on her. I hadn’t thought about this before, and she has never acted this way before. She probably didn’t remember what it is like to have a massage. In addition, the therapist was someone she had not seen in quite a while. I am sure everything seemed strange to her even though I have been taking her twice a month for about three years. She has never expressed any enthusiasm about her massages, but I thought they must be enjoyable. Now, I am reconsidering. I think I’ll try one more time. If she isn’t happy with that, I’ll stop taking her.

The rest of the day went well. When we got home, we picked up her photo album again and looked at it until it was time for us to leave for jazz night at Casa Bella. We have heard the singer and the woman on the keyboard many times over the years. They are well-known locally and around the state. It was a very good evening. Kate had trouble hearing and understanding a lot of the conversation, but we were sitting with the same couple we’ve been with since the music nights began. They operated the restaurant for many years until they turned it over to their daughter and her husband. Shortly after we were seated, Kate said, “What’s the name of this place?” I told her and then said, “And this is the daughter of the woman who started the restaurant.” Kate had, of course, forgotten that as well. It was not an uncomfortable slip since the couple are aware of Kate’s Alzheimer’s and have been very supportive of her.

We got home a little later than usual, and Kate went to bed right away. It was a day of ups and downs, but it’s always good to end on a high note. We did.

Back to Our Routine

We said goodbye to Kevin and his family night before last, and they left yesterday morning. We were back to a regular routine. That doesn’t mean that everything went the way I would have liked. Once again, Kate had a slow start. It was another morning when she didn’t recognize me as her husband. It seems this is becoming a pattern. When this happens, I don’t try to convince her, I redirect the conversation to something else. This morning I did something I don’t usually do. I said, “Could I ask you a question?” She said, “Yes.” I said, “If you don’t think I am your husband, who do you think I am?” She said, “I don’t know.” I said, “Do you think of me as someone you can trust?” She looked at me, hesitated a moment, and then said, “Yes.” I told her I was glad to hear that and wanted her to count on me for anything she needs.

On the way to lunch, I mentioned that we had met at TCU and that was where we had our first date. That led to a few other recollections of our past together. By the time we got to the restaurant for lunch, she seemed to be herself. I don’t mean that she knew my name or hers, but she seemed comfortable with me and our surroundings including our server.

As soon as we returned home, she wanted to rest. It wasn’t long before our sitter arrived. I gave her an update on the past few days. Then she went back to the bedroom to say hello to Kate. I followed in a few minutes and told her I was going to the Y and would see her later. She was very comfortable with Mary and fine with my leaving. I left with a good feeling.

When I got home, they were watching the last part of Les Miserables. They were both enjoying it. Mary left, and Kate and I watched the last thirty minutes together. She was as engaged as she has ever been. I was happy to see that since the last time I had put it on, she wasn’t as excited. That was the only time she has failed to respond with enthusiasm.

After dinner, I watched the news and then switched to several music videos that I knew Kate would like. She worked on her iPad and didn’t want to stop when I said it was time for us to get ready for bed. She said she wanted to finish the puzzle she was working on before putting on her night gown. I know from experience she can’t remember to stop when she finishes a puzzle. It was thirty minutes later before I told her it was time to get to bed. She didn’t want to stop. I told her I wanted to get to bed myself, but I didn’t want to do that if she wasn’t in bed. She reluctantly agreed to stop.

Once she was ready, she asked if she could work on her puzzles in bed. I told her that would be fine. That turned out to be a mistake. As I tried to get to sleep, she kept talking to me. She would tell me how well she was doing and wanted to show me the completed puzzles. As usual, she also wanted my help completing several of them. Despite the cataract surgery, her Alzheimer’s still affects her vision. Off and on she thinks she has finished a puzzle when one or two pieces are not exactly in place. When that happens, the app won’t indicate that the puzzle is solved. That means she can’t start another one. This continued for about thirty minutes before she called it a night. This was a time that I suspected the amount of sleep she had the night before and her afternoon nap made it hard to go to sleep. I have expected this to happen before, but it hasn’t. I hope this doesn’t signal a new routine.

Day Two With Kevin’s Family

There is no way to fully understand the way Kate (or anyone else with dementia) is experiencing the world around her. I believe other caregivers try their best to do so. I know I do. Right now, I am wondering how to describe what Kate experienced yesterday. One thing I know is that being in a group is challenging for people with dementia. It certainly is for Kate. That isn’t hard for me to understand. I think most people feel a little awkward in a group where they don’t know anyone.  It has to be even more difficult for someone who doesn’t know why she is there, what she is supposed to do, or have any memories that would help her engage in conversation. Kate’s general approach is to be more subdued in a group. On a few occasions, she is more talkative as if she were trying to make sure she is noticed. That’s the way she was the day Kevin and his family arrived.

Yesterday she was more subdued, and I would say somewhat uneasy. When I woke her, I told her we were going to the zoo with Kevin and his family. She frowned. I didn’t think much of that. She has done that before when I have suggested a trip to the zoo; however, she has always enjoyed it once we are there. I am glad to say that she did yesterday as well. It began as we walked from the parking lot to the entrance when she saw the spring flowers that were starting to bloom. There were many others throughout the zoo that she enjoyed as well.

Of course, the animals are the big attraction. That was true for Kate. She took special pleasure in feeding the Lorikeets from a cup of nectar. That has been a highlight of our other visits over the past year. She also got a kick out of the mother gorilla who was nursing her infant, sea lions and tortoises. This was an easy experience for her. We walked a good distance, and she was ready to leave when we did. I felt good about it because she got in more walking than she is accustomed to, and she also enjoyed everything she saw. The zoo provides an experience that taps into her intuitive abilities. She may not remember names, places, or events, but she can appreciate the sights she sees.

There is something else that made the zoo work well. We split up with Kevin’s family. That meant she could walk at a leisurely pace and stop to look at the animals as long as she wanted. She wasn’t under any pressure.

From the zoo, we went to dinner. She was much more subdued. Sitting around the table with the seven us didn’t lend itself to a group conversation. She said very little and seemed a little bored. When we got home, she continued to be quiet. At first, she looked at a magazine. Then I brought the iPad to her, and she worked puzzles while Kevin and our grandson, Taylor, played Mille Bornes, and the rest of us talked.

I am still trying to grasp what Kate may have been thinking. I know she couldn’t remember that they were her family. I had been telling her quite some time that they were coming. Off and on yesterday, I also mentioned who they are, but those were very isolated instances. Her memory lasts only seconds. She must have asked herself, “Who are these people and why are they here?” I need to be more creative with ways to make her part of the group.

Visiting with Keven’s Family

On their way into town yesterday, Kevin and his family met us at a restaurant near our home. Kate behaved differently than she usually does. If we had been with strangers, I would have quickly slipped one of “My Wife Has Alzheimer’s” cards to someone who could pass it around the table. There was no need for that since everyone was aware of her diagnosis. Part of the problem may have been the noise level in the restaurant. That made it difficult to hear and understand what people said. Frequently, she had to ask us to repeat things. It was more than that, however. It was one of just a handful of occasions when Kate appeared a bit like a child who might be vying for attention in a group in which she felt overlooked. I think this might be a sign of insecurity, and she responds by trying to be more outspoken than usual. If she experienced any insecurity, it was not reflected in her disguising her memory problems and confusion. I believe that everyone heard her ask my name and hers at least once while we were waiting for our food. They may or may not have noticed that she asked my advice about what to order. Together we decided on the blueberry pancakes, but she forgot and several other times asked about what she could get.

After lunch, we went back to the house for the balance of the afternoon. The grandchildren quickly noticed that an 8 ½ x 10 photo of our eldest grandson, Brian, stood out among an assortment of smaller family photos on the entertainment center. That turned out to be a good thing because it eased us into discussion of who all the people were. Kate actually took the lead in that when she suggested a game in which each of us would pick out a photo and tell the rest of the group who the person or people were. I thought that was especially interesting in light of the fact that she normally has difficulty identifying the people herself.

As we started to pick up on the idea, it was clear that Kate was confused. Since I knew each of the people, I jumped in and showed each picture to Kate and the group and explained who was in the picture. Her Alzheimer’s was obvious in her failure to recognize family in the photos.

The Big 12 playoff game between Kansas and Baylor came on at 3:00. We went to our bedroom to watch the game on a bigger screen. Kate remained behind working on her iPad. I felt her staying behind was a sign of her not feeling a part of the group. Thinking back, I suspect that she didn’t understand where we were going and why. There are many things she doesn’t pick up in group conversations. I went back to the family room and invited her to join us. She did, but she also chose to lie down on the bed and nap while we watched the game.

After the game, Kevin’s family left to check in with a friend with whom they are staying. Kate didn’t make any effort to say goodbye. When they were gone, I asked if she would like to get up. She didn’t and remained in bed until I told her it was time for us to meet everyone for dinner. We ate at a pizza place where we used to take Kevin and our daughter Jesse when they were young. At the restaurant, Kate again seemed a little more childlike. I believe she still felt a little insecure, but she got along all right.

When we got home, I turned on YouTube, and we watched video segments of Andre Rieu concerts. She worked on her iPad for a while and then stopped to watch the videos. She seemed to enjoy herself and talked about what a nice day it had been as she got to bed.

We won’t be getting together until this afternoon when we go to the zoo. Kate usually enjoys seeing the animals. I am optimistic the afternoon will go well.