A Funny Incident

2017-10-17 (4:47 am) 

Something funny

About 45 minutes ago, I got up to go to the bathroom. When I got back in bed, Kate was up. Nothing unusual about that. She frequently gets up to go to the bathroom at this time of morning. Then I heard her in the kitchen. Next thing I knew was that she had come back into the bedroom with a glass of apple juice in one hand and a container of yogurt in the other. This was at 4:15 a.m. She turned on the light followed by the TV. I looked over at her and asked (in a very non-threatening way), “What are you doing?” She answered, “Having my breakfast.” I pointed out that it was 4:15. She said, “So?” About five minutes later, she was again ready for bed, turned off the TV and light, and got under the covers as if this were the regular routine.

This brought back quite a few funny moments with my dad. He frequently woke up in the middle of the night and didn’t realize what time it was. When he did, I, along with my brother and two or three close friends, received phone calls from him. I’m glad that all of us were able to accept this habit humorously.

We leave for Texas today, and there are still a few odds and ends that I need to take care of before going to the airport. This will give me a little time for that.

 

Two Interesting Things

2017-10-16 (10:31 am)      

I have been a frequent reader of the posts of the members of Memory People, a closed group of people with dementia, their caregivers, or anyone else with an interest in dementia. Last night I read one that caught my attention. Many of the posts are written by caregivers expressing a range of emotions from sadness, to frustration, to anger as well as a modest share of more touching stories about the ones for whom they care. This one falls in the latter category. I was especially happy to read it because it sounded so much like something I could have written about Kate and me.

I replied to his post and thanked him. He replied to me and mentioned that he had planned to go to Wake Forest but ended up at the University of Wisconsin because of a nice scholarship they awarded. I suspect he must have checked my Facebook profile and seen that I had graduated from Wake. I responded to him and said that Wake and Wisconsin had been special places for us as Kate and I had met at Wake, and our first move was to Madison. What an interesting coincidence.

I checked further to learn that he is pastor of a Baptist church within a 100 miles of Nashville. I wonder if we will have other communications. I will certainly look for other posts he writes.

The second experience occurred this morning at Panera. Upon our arrival, we stopped at a table where two regulars were seated. We got into a conversation. At one point, one of the men mentioned to the other that we were getting ready to make a trip to Wake Forest. Kate had a big look of surprise and said enthusiastically, “We are? You didn’t tell me that!”

Her response surprised me, not because she had forgotten that we were leaving tomorrow. Even tomorrow morning, she won’t remember when we are going. I did, however, think that she would remember that we were going soon. We have been talking about it and the fact that she will be seeing cousins, her grandson who is a freshman, our son, and a number of friends from elementary school. It was humorous as well because I knew that the man who brought it up knew that I had told Kate about the trip. 

 

Closing the Week on a Good Note

We ended the week by attending a concert by our local symphony orchestra. We hadn’t attended in about a year because Kate gets tired in the evening. Last night the program included a Beethoven piano concerto by someone who is an outstanding musician. I encouraged Kate to go. She readily accepted. That is in keeping with how she has handled everything this week.

We left at intermission so that Kate could get to bed. As were walked through the lobby, I saw a friend, and we walked over to speak with him. When we walked away, Kate said in a very disturbed tone of voice, “You shouldn’t have said that.” I didn’t know what she was talking about and when I asked she said, “You know.” I asked again. She said, “You told me I should have told them about our moving to Texas.” I told her I hadn’t said that and that she hadn’t anything about Texas. I could quickly see that she wasn’t accepting that and didn’t say anything more. Everything was fine after that. She was in a good mood all the way home and all day today.

Difficulty Using the iPad

October 14, 2017

I have mentioned several times that Kate is having difficulty when she works on jigsaw puzzles on her iPad. At first, she tended to think there was something wrong with the iPad itself. Over time she has come to realize that “operator error” is involved.

The problem she experiences is that hits a button on the screen that takes her to options to buy more puzzles. She seems to recognize this is not something she wants to do. Her initial response was to close the iPad and put it down on the table when we are at Panera. Then I ask if I can help. She doesn’t answer. I pick up the iPad and get her back to the puzzle she was working on or a new puzzle if the problem occurred after completing her puzzle.

For months, I have encouraged her to simply ask me to help, and I would be glad to do so. This morning, for the very first time, it appears that she may be giving in to that. It occurred when she encountered a slightly different problem. She had almost completely finished a puzzle when she couldn’t see any more pieces. That was because there is a button at the bottom of the screen that removes all the unused pieces from the board when you hit it, something she had obviously done. When you hit it the next time, the pieces reappear. I showed her the button. Then I said, “But I want you to feel free to simply ask me to fix the problem if it happens again.” She said, “I will.” I said, “That makes me feel good. It makes me feel needed.” She smiled and went back to her puzzle.

I know that this doesn’t stop her from incurring any future problems. I do hope that it is one small step in strengthening her view of me as a willing helper when she encounters problems.

The Sitter is Working Out

October 13, 2017 (5:08 p.m.)

Today was the first day that I did not announce to Kate that the sitter was coming. I just let Mary meet her as she was working outside.  As I had hoped, there was no problem at all. I went out to let them know I was leaving. I also mentioned to Mary that Kate might want to go to Panera sometime and gave her money to buy what they wanted. Kate’s eyes brightened. She had a big smile on her face and said, “We can.” I started to tell Mary what  bagel Kate likes, but Kate stopped me. Then in a very nice way she told Mary that I can be very controlling. I started back to the garage and Mary asked me to wait. She asked me to write down what Kate likes and put it on the island in the kitchen. I did.

I stopped the car as I drove down the driveway and told them I was leaving for the Y. Kate waved and said, “I’m in good hands.” I felt good.

In addition to the Y, I was able to stop by two shops where Kate used to buy most of her clothes. I was looking for a couple of new tops to take to North Carolina next week. I got one top at each place. Then I went to Whole Foods where I got a dish of mint chocolate chip ice cream and worked on this journal.

When I got home, Kate was resting. Mary told me they had been to Panera where Kate had a bagel. Mary said that Kate had remembered our phone number to give to the person taking their order. I was floored. This would have been the first time in several years that she had been asked for the number.

After Mary left, I walked into the bedroom where Kate was resting. I told her I had heard that they went to Panera. Kate said yes then added, “She is great.” This is working out.

Optimistic About Another Good Day

After almost six years and nine months, I hesitate believe that our high moments will continue indefinitely. That said, since Monday afternoon  everything has gone well. That lifts my spirits and leads me to feel more optimistic about the day ahead.

Last night we went to Casa Bella for Jazz Night. This was a night change from Opera Night and Broadway Night. Kate and I both enjoyed it. I like the fact that provides another monthly musical performance that both of us can enjoy. Besides being entertaining, we also enjoy the company of those with whom we share a table. Typically, it is with the couple are are the senior owners of the restaurant (now retired). These programs are perfect for us because they start at 6:00 for dinner with the music beginning around 7:00. We are through by 8:30. This means Kate gets to bed a little later than other nights but not by much.

We got off to a good start this morning. I slept a little later, 6:05. That meant there was a little light when I took my walk. Right now it is so warm and humid in the morning, I prefer to walk in the dark. When I returned home, Kate was up. I thought that might mean an early trip to Panera. I was wrong. About 8:15, she came into the kitchen and said she was going outside. I was surprised because this is only the second time in many months that she has not come out ready for Panera. When I expressed my surprise, she said she would want go for muffin later. We did and have come back home for a break before lunch. She was feeling a little tired and is resting right now.

The sitter comes at 1:00; so I will plan for us to leave for lunch at 11:30. On Fridays we normally go to Applebee’s which is very close to our home. That will make it easy for me to get back home and put on my gym clothes before the sitter arrives. Because Kate has accepted the sitters so naturally, I don’t expect a problem today.

Especially Good Mood

October 12, 2017 (7:21 p.m.)

I don’t often post a second post so soon after another, but I have just witnessed a first. About 45 minutes ago, I called Kate in from the yard so that we could get to our haircut appointment at 3:00. She came right in, something that she didn’t use to do but that has been becoming more typical nowadays. When we got in I told her we had to leave in 30 minutes. I know she can’t remember, but somehow it seems to help me to give her a reminder that we are going someplace soon.

As I expected, she took a shower. At 2:40, I went to her room to check on her. She had gotten out of the shower but was not yet dressed. As she started to dress, she motioned to me to find a bra for her. I looked in her drawers and several other places. I finally found one and brought it to her.

Getting into bras can be challenging for her. I hesitantly offered my help and said something about women’s clothes being so difficult to get into. Very naturally she accepted my help and together we got it on. Then I told her I would get a top for her to wear. I gave it to her. She gladly accepted it.

As we were leaving the house for the car, I thought about how cheerful she had been in a situation that in the past has been one of the most difficult for both of us. She knows I like to be on time. I know that she can’t keep time straight and doesn’t seem to be able to hurry. This time she was as cheerful as she could be. She didn’t hurry but she dressed more quickly than usual. What’s more she accepted my help.

In the car on the way to the hair dresser’s, she mentioned that she got ready without causing us to be late.  More significantly to me is that she specifically noted that she didn’t give me a hard time and let me help her. I was stunned with here observation. Then I told her I was glad to hear her say that because I had just been thinking the very same thing.

This particular experience is consistent with the way she has been since Monday afternoon.  I know it’s too much to think that this will last; so I am just going to rejoice in this moment. I am also going to remember that even when she is less cooperative, she is not really difficult to deal with. As I have said so often, we are very fortunate. I hope those of you who read this and are having much more challenging experiences will understand that I recognize our good fortune and wish it could be the same for each of you.

Our Story

Kate and I met in the fall of 1960 while students at Texas Christian University. I was a junior. She was a sophomore transfer from Stetson. We met at a Sunday night social at the home of another student and high school friend of Kate’s. Apart from meeting, neither of us remembers anything else about that night or any contact that we had between then and December 19, 1961, when we had our first date. I took her to a performance of Handel’s Messiah. We had no idea that would be married almost 18 months later.

In some ways, we were from two different worlds. Kate was born and raised in Fort Worth, Texas. I was born and raised in West Palm Beach, Florida. Her father was from a family of 8 children, 6 of them lived their entire lives in Fort Worth. Only one of the eight children lived out of state. That meant Kate grew up with lots of aunts, uncles, and cousins. I, on the other hand, had no relatives living in my home town except my mother, father, and brother. I had grandparents who lived in Tallahassee along with an uncle and two cousins, but we rarely saw them. My other grandmother lived in St. Louis and stayed with us during the winter. We both grew up in Methodist families, but her family was more actively involved in church than mine. In addition, West Palm Beach was a much more secular place than Fort Worth.

Our first date came near the end of the first semester of my senior year. I had taken a part time job at a funeral home at the beginning of the second semester. This job turned out to play a central role in our courtship. I was on a tight budget; so I didn’t have much money to spend on dating. The funeral home offered a couple of perks that helped me. First, as flowers were transported from the funeral home to the cemetery, there were always some that came loose from the bouquets or stands on which they were fixed. Sometimes I would pick up a carnation or rose and drop by the campus to place it in the driver’s seat of Kate’s car. Another benefit involved my occasional trips to another city to pick up a body and bring it back to the funeral home for a service and burial. When I was on these trips, the company paid for my meals. They let me take Kate along and picked up her meal as well. We would have a nice dinner. Then we stopped by the funeral home to pick up the body, and bring it back to Fort Worth. Looking back, it’s hard for me to believe that Kate’s parents never had a problem with this. At least they never said anything.

Kate and I married on May 31, 1963, and lived in Fort Worth the next two years. We both pursued master’s degrees at TCU, she in English and I in sociology. She taught English at a local high school. I had an assistantship in sociology for which I taught a couple of introductory courses. Upon the completion of my M.A. in the summer of 1965, we moved to Madison, Wisconsin,  where I started a Ph.D. program in sociology at the University of Wisconsin. Kate took a job as a secretary to the director of graduate admissions in the English department while finishing her master’s thesis. She received her M.A. in 1967. We both considered our three years in Madison as a very special period in our marriage. We felt like this was the first time for us to be on our own since we had lived our first two years in Kate’s hometown. Neither of us had ever been to Madison before that July afternoon we drove into the city. The university, the town, and the friends we made there changed our lives in lasting ways.

Because there were so many spouses applying for teaching positions in the public schools in that area, Kate was unable to get a teaching job. That turned out to be a good thing. She became a secretary to the director of graduate admissions in the Department of English. He was quite a scholar and a very interesting man. He and his parents, German Jews, left their home country in 1938 as Hitler’s persecution of Jews intensified. Several years later, one of her friends at TCU married her boss, and Kate kept up with him until his death in 2015. This relationship provided Kate with a strong bond to the university even though she was not a student there.

In July 1968, we moved to Raleigh, North Carolina where I took a position as Assistant Professor of Sociology at NC State. Like the move to Madison, this one signaled the opening of a new chapter of our lives. I was beginning my professional career, and Kate was pregnant with our first child, a daughter, when we made the move. Two years later our son was born. During the Spring of 1971, I joined the faculty of the Department of Sociology at the University of Tennessee. So off we went to a new adventure in Knoxville where we have lived for the past 47 years.

I taught at the university for seven years while Kate cared for our two children at home until they were in preschool. Like most other parents, our lives were wrapped up with our children. Kate, who didn’t cook at all before marriage, became quite a cook afterwards. Just about everything she learned came from her mother who had reputation as an excellent cook and hostess. Not everything she knew about cooking came from her mother though. During the early 1970s, she became a fan of Adele Davis. She also took great interest in our childrens’ diets. She wanted them to have snacks that were nutritional. She used to make homemade yogurt regularly and mixed it with orange juice for frozen popsicles. She made homemade whole wheat bread and pizza with whole wheat crusts.

When our second child was about a year away from first grade, she enrolled in a master’s program in library science. She completed her second master’s degree in 1977 and began a career as a librarian/media specialist with the public school system. As she did, I left teaching to embark on a career in my own market research business that continued until my retirement in 2012.

In 1990, shortly after her father died, Kate retired from the public school system and became a volunteer librarian at our church. This turned out to be a fulfilling position for her. She was well qualified professionally with an M.A. in English and a second master’s in Library Science. Beyond this her background in church and her personality made her a natural for this position. She loved working with the staff and the members, especially the children. She served in this position 19 years. Her only reason for retiring was her Alzheimer’s. That made her work more challenging. She just couldn’t handle it in the way she had done in the past.

As a volunteer, her work provided her a good bit of flexibility that she hadn’t had with the school system. That is important because my professional career involved a lot of travel. Occasionally, especially if I had a meeting in New York, she would travel with me. Either before or after my business obligations, we would enjoy ourselves. In New York that meant attending Broadway shows.

It was also a time when both of our children had graduated from college and establishing their own families. In 1998, our first grandchild was born. Since that time we have added 4 others, twin boys for our daughter and her husband and 2 sons and a daughter for our son and his wife. Up until the oldest was 15 or 16, they visited us one child at a time for a week each summer except for our daughter’s twins. They always came together.

Sometime around 2006 Kate began to exhibit the first signs of Alzheimer’s. She recognized  that her memory was not as good as it used to be. I tried to reassure her and repeatedly told her that we all develop greater diffculty remembering things as we age. I wasn’t just saying this; I really believed it. As time passed, I noticed other things that were signs that she wasn’t the same. I couldn’t put my finger on it. I just thought that her behavior patterns didn’t seem as functional as they used to be. For example, we ate dinner out more frequently now that the children were away, but now she wasn’t preparing for dinner on a regular basis. That led me to start a little cooking myself. I also began to take out food from several different restaurants. She wasn’t as careful about clutter around the house. In addition, she was frequently misplacing or losing things.

Kate has always been directionally challenged. Now, however, she was having difficulty remembering how to get to places that she had grown accustomed to going in the past. I would received calls at the office that she was lost and seeking my help getting her where she wanted to go.

By the summer of 2011, both of us began to realize her symptoms were more than what we should expect with aging. We decided she should have a discussion with her doctor at her next appointment in December.  Her doctor recommended that she get a PET scan and arrange a psychological analysis with someone who specializes in diagnosing dementia.

Her doctor arranged these appointments. On January 21, 2011, we both went to see her doctor who was to tell us the results of her scan. That is when we received confirmation of what we had been suspecting a long time. She had Alzheimer’s disease.

We couldn’t imagine the changes that we would face in the years ahead., but we immediately committed ourselves to making the most of our time together. That included taking care of a variety practical matters as well as the really important things like what we wanted our lives to be like in the years ahead.

I will have to say that Kate is the one who was determined to get a diagnosis. I didn’t fully understand what a difference that knowing would make as we planned for the future. It turned out that knowing for sure that she had Alzheimer’s, changed my outlook toward Kate and her behavior. I now understood that she couldn’t control the things she was doing or not doing. I stopped blaming her. Knowing that our time was going to be shorter than I had thought caused me to value more deeply all our moments together. It also led me to take much more initiative in planning things we could do. That included travel, attending many concerts and theatrical performances, eating out more frequently and making mealtime a social occasion, and spending time with friends.

At the time of this writing, I believe Kate is in the early part of Stage 6 of the 7-stage model of Alzheimer’s. (See the Alzheimer’s Association’s website for more information.) I am satisfied that we have achieved our goals. Of course, we haven’t been able to avoid the changes that Kate has made as a result of the Alzheimer’s. We have, however, been able to live full lives.  In this respect, we have been more fortunate than many couples who face this disease. We have enjoyed life throughout our marriage and have been doing the same as we continue Living With Alzheimer’s.

Bouncing Back After Kate’s Stomach Issue

Ever since Monday afternoon (3 days ago), Kate has felt fine, and she has been in an especially good mood. Yesterday she received the sitter as though they were old friends. She was outside working when the sitter arrived. I was already dressed for the Y. Even though Kate has accepted the sitter each time, I still like to make a formal handoff; so I walked the sitter to the front yard where Kate was sitting down on the edge of the flower bed. I said, “Anita is here. I think I will leave it in your hands.” Kate responded, “I think we can handle it.” I left, once again feeling good that she continues to be so accepting.

One of the things I am learning is that four hours doesn’t allow as much time as I could sometimes use. To go from our house to the Y, exercise, shower and dress takes a full two hours. If I have a meeting, that will take at least an hour. That leaves only an hour to run other errands without counting the drive time home.

This is causing me to consider what kind of schedule I want to work out. There may be times when an extra hour would do the job. Because Kate doesn’t like to stay in one place for 4-5 hours, I might encourage the sitter to take her to a Panera or similar place where they could get something to drink. Kate could work on her iPad. On the other hand, at some point I know that I will want to add an additional day. I don’t feel I am quite ready to leave her four days a week even if it is only for four hours each time.

We are going to get our hair cut in another hour. That is an event that we have worked out well. We go to the same person. We go together. I always let her go first. While she is getting her hair done, I often run short errands. When she has her hair colored, that gives me a little more time.

Tonight we will go to Casa Bella for something new. We have been attending Opera Night the first Thursday of every month for several years. When they added Broadway Night on the third and fourth Thursdays, we started going to one of those. They are introducing Jazz Night on the second Thursday. I think tonight is the first night. Kate is not a jazz enthusiast, but the person for whom the trio is named is a retired professor of music at the university and someone we have known for about 40 years. As always, we will sit with a couple who are in their 90s. The wife is the daughter of the woman who opened the restaurant many years ago. We enjoy their company as well as the music. It should be another great evening.

     

Symptoms/Seeking explanations

In my previous post I noted that Kate’s recent illness might have been caused by eating yogurt that was past its “sell by” date. This morning I noticed something that may be an even more reasonable explanation. Kate had opened the door to the refrigerator in the laundry room to get some yogurt. There were 2 unopened containers of yogurt on one of the shelves. She looked at one and started to pick it up. I suggested that we dispose of that. Then I picked up the other one and told her we should get rid of it as well. That set off a light bulb. It is not uncommon for her to open a container and start eating it before putting it down on the table next to her side of our bed or on a counter in one of the bathrooms. Sometimes she puts it back in the refrigerator’

These things make me wonder if she might not have left some yogurt out for an extended period of time, put it back in the refrigerator, and then ate it later, perhaps the next day. Maybe the yogurt could have spoiled during that time. I don’t suppose I will ever know the answer to this, but I intend to be more observant with respect to her yogurt from now on.