Problem Sleeping

I woke up at 3:16 this morning and was unable to get back to sleep. I finally got up about 4:45. My mind has been absorbed with Kate’s deteriorating condition. I am working harder to keep her entertained. I find it both challenging and discouraging. For the first time since I have been keeping this journal I find myself recognizing that she is entering that stage of Alzheimer’s that people most commonly associate with the disease. She is still able to hide her illness from most people, but she is becoming more detached from life than in the past. She hasn’t gone to church in a couple of months. I passed up the past two symphony concerts because I knew she would not be interested. I have declined a couple of other engagements because I knew it was not her thing.

More importantly for me, her whole mood has been changing over the past 2 months. I don’t see any spark of joy at anything. She can get up for certain social situations. She did that in Miami. She displayed some of that on the cruise but not much. She just doesn’t seem to be happy. I keep looking for the right word to describe her. She is listless, forlorn, bored.

At the same time, she is also more irritable with me. She snaps at me when I haven’t done anything to justify her reaction. She sees this herself I am sure. I say that because she often follows such reactions by telling me she loves me or grabbing my hand and holding it fondly.

I also see more moments in which she has imagined things that haven’t happened. Late yesterday afternoon I walked into our bedroom, and she said, “I am so angry.” I asked her why. She said because someone had said something (I don’t remember what that something was, but she was specific.) about her mother. When I questioned her further, I learned that she thought I had told her about someone who had said this about her mother. I assured her that I hadn’t said anything like that. She was puzzled and finally said, “Maybe I imagined that.” She has had several of these situations in the past week.

Problems Sleeping

I’ve always been a good sleeper, but over the past 2-3 years I have had occasional times when I wake up and can’t get back to sleep. In the past 6 months or so these have occurred somewhat more frequently. Several months ago at a routine doctor’s appointment the doctor asked me if I wanted something to take that would help. I told him no. Last week at another appointment neither of us mentioned it. I still feel the same way right now; however, I am reaching a point where it is something that I might consider if this gets any worse. I don’t usually have a problem while on vacation, but this is the second night in a row when I do have awakened and been unable to go back to sleep easily. Last night I woke up at 1:00 a.m. It was about an hour before I drifted off. This morning I woke up at 3:16 a.m. My mind began to think about Kate and our planned cruise in May. I asked myself if I am crazy. The reason for taking this cruise was to give her a chance to counter the boredom she is facing at home. I felt being with a people and being on board an interesting ship might minimize her periods of boredom. Thus far that is not the case. To be more specific, it isn’t boredom on the ship that is the problem. It is seeming so tired and uninterested in things. Yesterday she enjoyed sitting in the Observation Lounge and working jigsaw puzzles. She also enjoyed the movie we watched after lunch. She also enjoyed her spa treatment though she came right back to the cabin and got into the bed. It seems like the bed is becoming her security blanket.

All this is making me question if I am doing this for myself or for Kate. I clearly understand that change is not necessarily a good thing for someone with AD. I have been thinking it is easier for me to keep her entertained on a cruise than at home. Perhaps, it would really be easier and better for her if we stayed at home. At the same time I fear her vegetating there as well. The one thing that she still seems to enjoy is visiting with friends. We could continue to see the Greenleys, Robinsons, Davises, and Ellen in Nashville. We might even make a trip to see another friend in Birmingham.

There is much to consider now. As I think I mentioned in yesterday’s post, Kate’s deterioration is becoming more pronounced now. This is the first time I have been convinced of that. Typically, I am more guarded in saying that the signs are as clear as they seem to be right now. I know we will get through this, but I am just now beginning to face the reality that I am losing her. I feel sad and scared.