At Rotary yesterday, several people asked me how Kate and I are getting along. My answer is very much the same as it has been as long as I can remember. I say “remarkably well.” I believe that is just as true as it was when I adopted that as my standard answer. Recently, I have modified it slightly to say that over the past few months she has declined more significantly than in the past. Depending on the situation and the person I am talking to, I may say something like “She is now having trouble remembering my name as well as her own.” Then I add that we continue to be active and are enjoying ourselves. I think that is a reasonable summary of where we are right now. It just doesn’t fill in the details of what is going on. I try to do that in this blog.
I think yesterday presents a good picture of our daily lives. It was our day for the sitter, and Kate slept later than I would like in order for me to take her to lunch before the sitter arrived. I tried to get her up at 9:30. She seemed very tired, but she was ready for lunch around 10:45. That made it easy for her to have her lunch and get back home. She was neither very cheerful nor grumpy and not very talkative. Shortly after sitting down at our table, she asked my name. I told her. Then she said, “Wait, a minute. Say it again.” I did. She repeated it. Not five minutes later, she asked again. I told her. Over the course of the next few minutes, she asked another two times.
I told her that I would be going to Rotary and that Marilyn would be with her while I was gone. She asked me several times in a row to repeat Marilyn’s name. She wanted to know her first and last name. She was never able to remember it, but she did not express any concern about not being able to remember or the fact that I would be leaving her. Marilyn was already there when we drove up. Kate greeted her cheerfully. We chatted a few minutes. Then I told Kate I was going and would be back later. She asked what she could do. I told her she could stay at home and work on her iPad, talk with Marilyn, or look at some of her photo albums. I also mentioned Panera. That seemed to interest her. When I said goodbye, Kate gave me a dirty look.
When I got home, they were in the family room where Kate was working on her iPad. Marilyn said they did not go to Panera. She mentioned that they looked at the photo book Kate’s brother had made for her and that Kate had also taken a nap. After Marilyn left, I walked over to where Kate was seated. She said, “I’m glad you’re back.” I said, “I’m glad to be back. I like being with you.” She said, “I like being with you.” She placed emphasis on “you” as if to say “and not the sitter.” I said something about Marilyn’s being nice. She said, “She’s all right.” I didn’t pursue the discussion. I think we’ll just have to live with this a while.
The highlight of our day occurred later that evening. I should point out that our time together late in the day until we go to bed seems to be the most consistently good time we have. That may relate to the fact that I am more relaxed. By that time our routine is consistent, and I don’t have to think too much about entertaining her. We have a pleasant dinner. We come back to the house where I usually watch the news while she works on her iPad. Then I put on a DVD of a musical or something similar. Last night, I decided to go to YouTube for some of their musical performances. That turned out to be a real winner. Kate loved it. When I decided it was time for us to call it a night, she said, “It’s been a great day” several times. I also thought we had been well-entertained, but I especially liked seeing Kate’s response. We sampled an assortment of music and performers starting with the video of Kevin Spacey and Billy Joel and “The Piano Man” that I had played for Ellen on Sunday. Then I played about thirty minutes of Andrea Bocelli followed by The Three Tenors (Pavarotti, Domingo, and Carrera).
Kate’s confusion seems to be getting worse. That was expressed in a number of ways yesterday. As we prepared for bed, Kate said, “Where are we exactly right now?” At first, I said Knoxville, but she wanted a more specific answer. I told her we were in our house. She reacted with surprise. She seems to be putting more emphasis on knowing where we are now. She has asked that a long time, but it seems to be more frequent now. I can tell by other things she says that she often thinks we are out of town. At dinner last night, she said, “Are we in Fort Worth?” I mention this as another illustration that she is frequently confused, but it doesn’t keep us from experiencing enjoying life. We’re getting along “remarkably well.”
