I’ve heard the expression “bitter sweet” most of my life, but it has become considerably more meaningful since Kate’s diagnosis. I could apply it to many of the things we experience every day. Take today, for example. On the way to lunch, I mentioned that tomorrow is our grandson Taylor’s birthday. She said, “And who are his parents?” I told her Rachel and Kevin. Then she asked, “And, they are?” I told her that Kevin is our son and Rachel is his wife. Then she asked me to tell her their last name.
At lunch I told her we are going to be with our Memphis grandsons on Thursday. She asked their names. She followed that with “Who are their parents?” I told her Jesse and Greg. A few minutes passed, and she asked, “What is your name?” I told her Richard. She asked, “What else?” I told her. Then she wanted to know if I had another name. I gave her my middle name. She said, “That’s a nice name.”
I should add that she has been in a cheerful mood since getting up this morning. She has teased me a bit and was a bit playful. For example, in the car she asked if she could do something, and I told her that would be fine. She responded with, “Thank you, Master.” I said, “You must think I try to control your life.” I said, “I don’t think I control your life.” She smiled and said, “You don’t, but you try.” She said this without any sense of irritation. She was saying what she believes, but doing so in a very kind way.
Kate has been very childlike in her questions about names. I suspect she has had more trouble with family names for longer than I have been aware. She was just guarded about acknowledging it. Now she asks me the names of people and places all the time and does so without any effort to disguise her memory problems. When she asks me to help her with names, I feel she has opened herself to me in a tender way. At these moments, I feel very close to her. There is a sweetness about this experience that is hard to describe.
At the same time, there is also something very sad watching her lose the connections between names and the people she loves so dearly. It is a bitter sweet experience.
