Morning Confusion

A little earlier Kate was in the bed working on her iPad. I heard her express some frustration and say something about not being able to get this “thing” working. I asked if I could help. Then I walked over to her. She handed the iPad to me. I saw immediately that she was not in her jigsaw puzzle app but in photos instead. I got her back to her puzzles, and she said, “I can’t live without you.” I said, “You don’t have to; I will always be here for you.” I doubt that she can envision what the future holds, but moments like these are full of meaning for me.

Recently I have been struck by the fact that it seems like she has the most trouble with her iPad during the morning, especially while we are at Panera. At other times of the day, for example at night when you might expect her to be worn out, she is able to work on the iPad for long periods of time without needing my help. I wonder if it is just a morning grogginess that is the basis of the morning confusion.

Two More Good Days

Yesterday Kevin arrived for his quarterly visit. We met one of his high school friends and her mother for dinner. Afterwards, we went to a concert sponsored by the Knoxville Opera. It featured music from Porgy and Bess and a number of arias from familiar operas as well as several well-known songs from movies or Broadway shows. The included pieces like “I loves you, Porgy,” “Summertime,” “Somewhere over the Rainbow,” “Nessun Dorma,” and “Old Man River.” The singers were outstanding, and Kate was very enthusiastic.

We got to bed late last night; so we got up a little later this morning. I did get up for my walk. When I returned, Kevin got up, and we talked until Kate was up and ready for Panera. That was close to 10:00 a.m. We had some conversation with friends at a nearby table. It turns out that one of them is the mother of a high school friend of Kevin’s

From Panera, we went to church. Before going into the sanctuary, we stood around and chatted with friends. Kevin chatted with our pastor. Kate leaned over to me and asked me the pastor’s name. I told her, and she said, “I knew that.” We walked into the sanctuary and took a seat in one of the pews down front. As we sat down, Kate said, “Now I know where we are.” I asked her where. She said, “First Pres.” The she chucked softly and said, “I saw it on the sign.” She meant the screen at the front of the church that was scrolling upcoming events. We also spoke after the service with some friends we had not seen in a while. When we said goodbye, Kate asked who they were.

We went to lunch and then came back home for about 20 minutes before leaving to see The Hunchback of Notre Dame at one of our local community theaters. There were several very good singers in the large cast. We came back home where Kate worked in the yard for a while. Kevin and I came inside and talked about choices for dinner. We finally decided to go to a local seafood restaurant near downtown. We had a good meal and came back to the house. I put on a CD of Chris Botti. Kevin read a TCU magazine and Kate worked on her iPad. I joined them for a while. It was a pleasant respite after another good day.

As Kate readied herself to go to the room, she asked if she should connect her iPad to the charger. When I got to the room, she was getting into bed with her clothes on. I asked if she would like me to get a night gown. She said she would. When I got back she had taken her slacks off and asked me if she should put them on her chair beside the bed. I told her that would be fine. She said, “I thought so; I just wanted to be sure.” She is increasingly asking what she should do. In fact, she did just that as we got home from the theater. As she loses touch with more things, she looks to me for guidance to make sure she is doing the right thing. These are always things she would never have asked me about in the past.

This is one visit during which Kevin is bound to see more of the changes that Kate is exhibiting. She seems more childlike and less sensitive to the fact that Kevin will interpret her actions as something related to her diagnosis.