Kate’s Alzheimer’s Diagnosis and Our Thoughts About the Future

For months, I’ve reported on positive changes in Kate’s behavior. She is better now than she was two or three years ago. This doesn’t mean that we have found a way to cure Alzheimer’s, but even at Stage 7, we have found ways to live joyfully.

Occasionally, people ask me how we’ve been able to live so well. I’ve given that a lot of thought and would like to share those thoughts in several upcoming posts.

Today, I’ll focus on our immediate response to Kate’s diagnosis. It was January 21, 2011, exactly one week after she turned seventy. Although we had seen the first signs of dementia more than five years before, the reality of the diagnosis frightened us. Our marriage had been filled with joy, and we were afraid that Alzheimer’s would make that a thing of the past.

We went directly from the doctor’s office to Villa Tronco, a favorite restaurant of ours. We began a conversation that continued for several weeks, perhaps months. We had been caring for our four parents (and my dad’s girlfriend after my mother died) for twenty-two consecutive years. We were aware of the many challenges we were likely to face. Now, it was time to focus on our own future.

We spent much of our time discussing how each of us felt and the first steps we should take. We talked about when to tell our children and our friends. We considered the practical issues, such as legal and financial decisions.

We reflected on the things we had enjoyed during our marriage and wondered how long we could continue living so well. We had no idea but made a decision that worked then and now. We would just enjoy life and each other for as long as we could. I’ll have more to say about this in following posts.