It’s hard to know what to expect each morning. I do know that Kate sleeps later now than she did a year ago, but sometimes she surprises me by getting up early. I also know that she has always been “slow” in the morning. Over the past few years, she has also been a bit groggy when she wakes up. Sometimes she shows no signs of grogginess. That was true yesterday.
Just before 9:00, I saw that she had rolled over in bed and thought she was about to get up. I walked into the bedroom. She was lying in bed with her eyes open running her fingers through her hair. She gave be a smile as I approached the bed where I sat down beside her. We chatted a few minutes. She was in a good mood and seemed very clear-headed but wanted to rest a little longer.
Close to 10:00, I noticed that she was up and looking at the clothes I had put out for her. I went to see if I could help her. She didn’t seem as alert as she was earlier. She was trying to gather her clothes together to take them into the bathroom before showering. I offered to help, but she didn’t want help. She asserted her independence, and I let her.
I went back to the kitchen where I could watch on the video cam. She went into the bathroom and didn’t come out for almost thirty minutes. I thought she must have showered. I went back to her. She hadn’t showered and wanted to go back to bed.
An hour later, I tried to get her up. She wanted to stay in bed. I told her I would come back in thirty minutes, and we could go to lunch. When I returned, she still didn’t want to get up. She told me to go to lunch without her. I said I would feel uncomfortable leaving her. In a soft and gentle voice I said, “I’m ready for lunch and would love to take you. Why don’t you get up and come with me?” She agreed but didn’t want to take a shower. I decided not to push it. I started to help her get dressed, but she wanted to do it herself. I stayed in the room. She asked for my help once or twice.
Once she was up she seemed fine. We didn’t talk much on the way to lunch. I played some music that she likes. The lunch went well. She brought up her mother and commented that she looks like her. I reminded her we have her father’s family movies from the mid-1930s to about 1945 and asked if she would like to look at them when we got home. She liked the idea.
On the way home, she said she wanted to rest. She did just that when we got back. After an hour or so, I asked if she was ready to see the movies. She was, and we spent almost two full hours watching them. She needed help identifying people throughout the entire time. That related both to the quality of the films and her Alzheimer’s. The films were originally shot in 16mm, many in color. They had deteriorated a good bit before they were transferred to VHS tape and more recently to DVD. Her problem was more than that, however. The movement from one person to another made it difficult for her to know what to focus on. When I directed her attention to her mother or the few in which her father appeared, she could never see them. I would stop, rewind, and then stop again when her mother came into view. I am happy to say that she loved every minute of it. I thought that she might get tired. That never happened. She was captivated seeing her grandmothers, aunts and uncles, and cousins as well as her parents. She was especially excited seeing her mother along with the other graduates coming out of the auditorium and shaking hands with the college president after the ceremony. It is also fun to see Kate from birth to about four or five. We have lots of stills, but the movies are really special.
After the movies, we went to dinner at a Thai restaurant. It was unusually busy. Kate was amazingly patient and never expressed the first complaint about the delay in our food. That surprised me because she usually thinks it takes a while for the food to arrive at any restaurant. In fact, she often asks, “Does this place have food?” only minutes after we have arrived or ordered.
It was after 8:00 when we got home, so we didn’t have a lot of time before going to bed. Kate worked on her iPad. She continues to have more problems working her puzzles. That started last night when she had to ask my help just to open (lift the cover) the iPad.
On balance, we had a nice day, but the entire past week she has shown further signs of decline that I would rather not see.