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Going Home

This is a travel day for us. We have had a good time in Lubbock with our son and his family. Though Kate has shown some confusion, she has enjoyed herself. That is what I was hoping for.

This morning after she got up she asked me if it would be all right for her to take a shower in our bathroom. I told her I thought she should just take a shower right here. The she said, “Are they still here?” I said, “We are in Lubbock. We are staying in the Residence Inn, and we are flying back to Knoxville today. She said, “Oh.”

A few minutes later, she asked about her clothes. I gave her a pair of slacks that I had put out last night. Then I opened a drawer and pulled out a top for her to wear. She said, “No wonder I couldn’t find anything. You were hiding it from me.” This was said in a neutral tone. She didn’t appear to be seriously complaining.

She saw me packing her suitcase but didn’t say anything. It was as though this is a normal routine for us. As I indicated in an earlier post when we left Knoxville, this will make things easier for me, but it is sad to see that she is relinquishing things like this. It is a sign of her decline.

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More Evidence of Confusion

We are in our hotel room where I have been checking email, Facebook, and looking at the Alzheimer’s caregivers forum. Kate rested about 30-40 minutes. A few minutes ago she picked up her iPad. She is working on it while still in bed. She said, “I’m glad to rediscover this room.” I said, “You are?” She smiled and said, “With your help.” I didn’t pursue this. She is happy. I didn’t want to confront her with the knowledge that she was imagining she was at home. This is just one more sign of her confusion which is intensifying.

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Observations on Our Trip So Far

We got back from lunch about 30 minutes ago. We were the first people to arrive, and they were not quite ready for us; so we walked around for a 10-15 minutes and then went back. I mention this because Kate is not big on walking. I would not even have suggested it if the rain had not stopped. The humidity was high however, and that bothered Kate.

The menu was only a brunch menu which for me was good. I had Eggs Benedict. Kate is getting more particular about what she eats. I think that is because she has forgotten many of the menu items and ingredients that she used to know and like. We went with the safest thing on the menu for her: shrimp and grits. She had had that last night, but it was very different. I thought it was good. She was not taken with it.

After lunch, we walked up to a square near the hotel where there were lots of kiosks with a variety of art. Some were not open because of the rain. We just did a quick walk through because Kate was getting quite hot. We headed back to the hotel, and she continued to get hotter. She was not enjoying herself.

Before we got back, she asked for a bathroom. We were not too far from a hotel where I took her. She didn’t say, but I was concerned that she might have been experiencing diarrhea. I try to prevent that by giving her 1 tablet of an anti-diarrheal with the nightly medicine. It is hard for me to determine what is just the right amount because it is hard for her to express herself about such things. Diarrhea is a side effect of one of her medications, Aricept.

We have enjoyed our meals as well as the silly comedy show “The Complete History of Asheville for Morons.” I would not recommend it to anyone, but Kate liked it. That is the most important thing.

The pacing of our trip has worked out well. We have had plenty of time for Kate to rest when she has needed to. She has definitely taken advantage of that. I don’t plan to book any other performances unless it is for Tuesday, the day we leave.

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Off to Asheville

Yesterday, when  I returned from my morning walk at 7:45, Kate was about to go outside. It was obvious that she had forgotten about our leaving for Asheville. I told her that we were going to leave at 9:45. She gave me a dirty look but didn’t go outside. She went back to her room to get ready.

At 9:00, she came out and told me she was ready. That was earlier than I had expected and meant that I had to rush to finish up a few things myself. When I packed my things, I also put in some tops and one pair of slacks in my suitcase. As I was gathering things together, she walked into the kitchen with a pair of underwear in her hands. She showed me and told me she had her black underwear.

I went back to her room to get her suitcase. When I picked it up, I noticed that it was very light. I opened it up and found that it was completely empty. All she had was what she was wearing except the black underwear in her hands. She hadn’t packed anything. I quickly gathered up several pair of slacks and tops as well as 3 pair of shoes and 2 sweaters. She came back to the room and asked what I was doing. I told her I had noticed that she hadn’t packed her suitcase and had packed it for her. She said, “Thank you.” She did it very naturally and was genuinely happy that I had done this for her. When we got in the car, I also discovered she had a pair of white underwear in a magazine along with her iPad.

Before leaving for Asheville, we stopped by Panera to get Kate a muffin. Thirty minutes after leaving Panera, we discovered that she had left her iPad there. I called but they didn’t find it. This is the third iPad lost in less than 12 months.

Last night I noticed that she was wearing a robe and an identical robe was on the bed. I said, “It looks like you have two robes.” She said it was a mistake. She meant to bring one gown and one robe but they were packaged like that. She said that was all right. This shows continued confusion. She hadn’t brought any robes. Both robes were in our closet here at the hotel, and she simply got two robes out of the closet.

This morning as I was finishing up in the bathroom, she pushed the door open. She looked quite groggy and didn’t say anything. I asked if she would like to use the bathroom. She said, “I want to take a shower in that shower.” I didn’t understand her, and she repeated it. I understood the second time. The way she said it was very much the way a young child would have said it. I told her I would finish shaving and then turn on the shower for her.

We just finished breakfast. She hasn’t said anything except in response to my questions. The answers have been minimal. She is not typically alert first thing in the morning; so I am not about to draw conclusions. For instance, I am not ready to say that she is disoriented being in a new place although it is a place we have stayed 5-6 times before. I do realize though that she probably does not remember much from those visits.

Kate put the iPad down and looked sleepy. I asked if she would like to go back to the room. She did, and here we are. We have been back in the room for almost an hour. She immediately got into bed. For much of the past hour she has been sleeping soundly as she is at the moment. I will need to wake her up in 15-20 minutes in order for us to get to lunch on time. We have reservations for 11:00. It is now 10:15.

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Still Tired

We had a nice trip home from Memphis yesterday. It was a full day. We stopped for lunch at a Cracker Barrel west of Nashville. Then we stopped in Nashville to visit with Ellen for a couple of hours. While Kate and Ellen were talking I ran over to the Courtyard Inn where we had stayed last Friday night. I had left my backpack with camera and supply of medications. I also neglected to clean out the closet. I left my belt as well as a sweater set and khaki slacks of Kate’s. As we came into Knoxville, we stopped for dinner. It was just about 7:30 when we got home, 11 hours after leaving Jesse’s house. Kate stayed awake the entire time. She often closes her eyes even if she doesn’t sleep. This time her eyes were awake the whole time.

Today she has been quite tired. This is the day for us to attend the Shepherd’s Center. Our first class begins at 9:00. Kate had gotten up as I came back from a morning walk. She had a glass of apple juice with her medications. Then she went back to bed. At 8:00 am, I went in to let her know we would need to leave in 45 minutes. She was quite groggy. I asked her if she still wanted to go. She did and got up. She came into the kitchen and got some yogurt. Then she went back to her room to get ready. I checked on her at 8:30. She wasn’t ready. She got a little irritated that I was rushing her. I backed off and decided to let her take her time. A few minutes before 9:30, she came into the kitchen where I was working on my computer. I asked if she were ready. She nodded that she was. Knowing that the Holocaust class had started at 9:00 and that it would take 15 minutes for us to get there, I told her the Holocaust class had already begun but that we could take a few minutes to stop by Panera and get a muffin. Then we could catch the other two classes. She was disappointed and said, “That’s the class I really wanted to go to. Was it my fault?” I looked at her. Before I could say anything, she said, “Why didn’t you make me get ready?” I told her I had tried.

We went to Panera and she seemed all right except that she seemed very tired. We sat in on the first class and then went to the second one on classic movies. When we arrived the teacher was not there. We took a seat. A gentleman who had been in the previous class with us sat next to her. I started a conversation with him. Kate got up and left the room. I assumed she was going to the rest room. Shortly after that, the teacher arrived and set up the DVD. Then she started the movie. I got up to check on Kate who hadn’t returned. I looked around in the hallway outside our classroom but didn’t see her. I walked down the hall and found her in a room that had a variety of books and other things. I told her the class was beginning. She came along with me. We went back to our seats. During the class, she appeared to be bored. She was looking around the room most of the time. We were watching The Americanization of Emily starring James Garner and Julie Andrews. We had watched part of it last week. At one point when Julie Andrews appeared on the screen she said, “She reminds me so much of Julie Andrews.” I told her it was Julie. She said, “I thought so.” I tried to imagine what was going through her mind as we watched the film. It must be so mystifying not to be able to follow what’s going on, what the teacher is saying, etc. She is working so hard understand the world around her.

As we were walking to the car, she said, “I really like old movies.” It was obvious that she derived some element of pleasure even though she didn’t understand much of what was happening.

On the way to lunch she closed her eyes. She looked very tired. When we sat down at a booth at the restaurant, she closed her eyes again and leaned her head on her hand with her elbow on the table. She looked so forlorn.

When we left the restaurant, I told her I would take her to Lowe’s. She was pleased. Then we got a call from an electrician who was coming out to the house to fix a light in Kate’s closet; so we went home. I told her I would take her after the electrician left. When he was finished, she was in bed resting. I asked her about Lowe’s. She said she would like to go later. That was over an hour ago. She is still resting.

This makes me think that the trip demanded more of her than I thought. I’ve heard many older people say it takes a while to rest up after their children leave or after a trip. Perhaps this is what Kate is experiencing. Life just wears her out.

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A Few Observations

Kate came downstairs just before 9:00 this morning. She had some yogurt and juice. Then she went back upstairs to rest a bit before we went to  a local coffee shop where we often go in the morning while we are in Memphis. She came back down before 10:30, and we left. While there, she was sleepy and put her head down to rest. It seemed a little early for lunch; so I encouraged her to hold on 15 minutes or so which she did. Then we had a nice lunch at a pizza place by the waterfront. We had a nice lunch. She continued to feel a little tired up until our meal arrived. After eating, Kate said she wanted to go to the rest room. I pointed to the area where it is located. She gave me a scowl indicating she didn’t need my help. I watched as she went in that direction. When she got near, she looked at a sign beside a door. I believe it was the sign for the men’s room. She then turned and was out of sight, but I know the rest room was down that way. When she came back she apparently didn’t see me in the booth where we were eating. She walked right by and spoke with a family with a small child. Then she went toward the front of the restaurant. I finished taking care of the check. When I finished, I got up and saw her standing at the reception stand at the front of the restaurant. Then we walked out. I am sure she lost me and realized the best place was to wait at the front. She was right.

As we drove home, she closed her eyes and rested. When we got back, I told her she would have plenty of time to rest. We came in, and she walked with her iPad into the living room and sat down in a chair. I got my computer and sat with it in a chair near her. In a few minutes, she asked, “Is it all right if I go upstairs to rest.” I told her that would be fine. Then she said, “What if I want to go to sleep?” I told her again that it would be fine. She is so childlike when she does this. It doesn’t happen often, but it sounds as though she is really seeking my permission. I wonder if she does this because she can’t remember plans that we might have coming up and is making sure that her rest doesn’t interfere with whatever is on our agenda.

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Having a Pleasant Stay in Memphis

Yesterday was Mother’s Day. Jesse and her boys drove to Nashville with friends to see Lion King; so Kate and I had the day to ourselves. At first, Kate seemed a little bored in the short time after she woke up. She didn’t get up until 9:00 or so and wasn’t dressed for the day until 10:00. Because it was Mother’s Day we had reservations for lunch. It was jam packed when we arrived, but we were seated right away. We enjoyed our meal. Then we came back to the house where Kate rested for about an hour while I worked on the computer and read the paper.

After that we went to the an old cemetery where they were having special guided tour at 3:00. For some reason Kate had originally said she didn’t want to do the tour, just visit the garden. The tour had just started when we arrived, and she seemed to enjoy it. The cemetery is beautiful, very park-like. When we finished, it was 4:15. Kate expressed interest in eating. That surprised me somewhat because we had finished a big lunch at 1:00. I do know from the past that she often feels like she is hungry long before it would be a normal time to eat. I thought about going someplace just to have something to drink. Then Kevin called to wish Kate a happy Mother’s Day. While we were talking, I drove to the river front. After Kevin’s phone call, it was 4:45; so we went into a restaurant with the intent of getting a light dinner. It turned out we split a prime rib and followed that with a Boxcar Brownie. It was two fudge brownies with three scoops of ice cream. We were stuffed but happy.

We came back to the house where we watched a little TV until Jesse and the boys followed by by their dad. He had flown home after being gone for a month or so.

We got to bed around 10:00. We had had a good day.

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From Memphis

We had a leisurely trip to Memphis where we met Jesse and the boys for a Lacrosse game. Their team lost, but they didn’t seem too disturbed by it. They have been playing 4 years and enjoy it.

Kate has gotten along pretty well but does get confused when we are in different places. Yesterday morning as I was finishing up in the bathroom before running out to Starbucks for coffee and a couple of blueberry muffins for her, I heard the door to the room open. I opened the bathroom door and found that she had gotten out of bed and opened the front door looking for a bathroom. I told her she could come in (to the bathroom). She said, “That’s all right; I’ll just go to another bathroom.” She obviously thought she was at home.

I won’t take this time for a serious discussion of how I am adapting as Kate’s condition worsens. I will only say that I believe I am letting a number of things slip that are a result of trying to think of so many things in connection with Kate as well as my own obligations. On this trip I left my backpack with my camera and backup medications in the hotel room in Nashville along with some of Kate’s clothes and my black belt. Fortunately, they found the backpack. I will pick it up as we pass through Nashville on Tuesday. I made a subsequent call about the things in the closet, but I haven’t checked back to see if they found them. I am optimistic that they did since they found the backpack. We haven’t come close to the situation described in the 36-Hour Day, but I can easily see how one can feel there are not enough hours in the day to do it all.

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From Nashville

Kate and I are going to Memphis tomorrow to visit with our daughter, Jesse, and her two boys. We arrived at our hotel room in Nashville about 25 minutes ago and are settled in our room. Kate is resting right now. As soon as she is ready, we will go over to the mall where I would like for us to look for some tops to go with various color slacks. I would also like to get her a couple of pairs of khakis for everyday wear. Clothing continues to be an issue although we are making progress. She is getting more accepting of my help. That ony occurs when she just can’t find something. She almost always likes to try on here own first, but it is getting harder and harder for her. The problem is twofold. First, she can’t remember where she put her clothes. When she looks, her eyes have difficulty seeing them. It is the brain and not the eyes that is the source of the problem.

This morning about an hour or 90 minutes before we the time I wanted to leave she was wearing a pair of khaki slacks that are too baggy for her around the legs. They fit fine in the waist, but they make her look heavier than she is. There were cheap slacks that I got her a month ago for ordinary daytime wear. She was also wearing her yellow sweater that is very soiled and stretched around the cuffs of her sleeves. Unfortunately, it is her favorite sweater. Even she told me early this week that it needed to be replaced. I have bought two sweaters to replace this one in the last 6 months. I don’t know where the first one went. I bought the second one, and Kate still gravitates to the old yellow one.

At any rate, I told her I would like for her to wear something else for the trip since we were going shopping and then to eat dinner in a nice restaurant. She asked what I would like her to wear. I asked her if she would like to wear black or brown slacks with the top she was wearing. She said brown. I went to my closet where I keep several pair of slacks and picked out a brown pair. I took it to her and then picked out what I thought would be a better top. I left her to dress while I finished packing.

After 20-30 minutes, she walked in wearing the identical things she was wearing before. I said, “You’re not wearing the clothes I picked out.” She asked, “Where are they?” I told her I didn’t know, that I had given them to her. Then I went back to her room to find them. I couldn’t find them anyplace. I finally went back to my closet and picked out a pair of black slacks, and she wore the same top she had on.

I asked if she had packed her suitcase. She didn’t remember. I opened it and found nothing in it. I left her to pack it. On Wednesday afternoon I bought 3 tops at one of her regular stores and packed them in my suitcase. I also packed underwear, a bra, and a couple of pair of slacks in case she didn’t remember everything she needed. I always have a toothbrush and toiletries she is likely to need except for make up which she doesn’t regularly use
Something else happened before we left. She came into the family room with her hands filled with small pictures in picture frames. She asked, “Should I take these with us?” I was puzzled and went over to see what she had. She told me, “I don’t want the children to break them.” I told her we were going to the boys and it was best to leave them here. Apparently, she thought I had told her somebody with children was coming to our house. I am seeing more signs of this type of confusion.

When we left the house, we went to Henry’s for lunch. She showed no signs of being perturbed. We had a nice lunch. The drive was a long one, but we were comfortable. I was not anxious as we had no particular deadline to be in Nashville.

5:23 pm
We just ran over to the mall and bought 5 tops and 2 pair of khaki slacks for Kate. We are both pleased with the selections. I am particularly happy that the total dollars spent was only $271. We would have spent more than that at her regular shops. For the first time, we bought a pair of slacks that are a size 16. I have been suspecting that some of the 14s we have been purchasing were a little too small.

8:38 pm
We had a terrific dinner. It turned out that the restaurant at which we ate was not the one I had intended. The good news is that it was very good. We are now back in the room. The TV is on to a Whoopi Goldberg movie. I think it may be Sister Act I or II.

Kate is discovering that there are many things she neglected to pack and that I did not cover her on. She has no sleeping attire, no toiletries, no bra, and no night guard. This reinforces my decision to cancel our trip to Europe. I need to cover too many things for her. It is a challenge for me to remember all of my things as well as hers.

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From Nashville

Kate and I are on our way to Memphis tomorrow to visit with our daughter, Jesse, and her two boys. We arrived at our hotel room in Nashville about twenty-five minutes ago and are settled in our room. She is resting right now. As soon as she is ready, we will go over to the mall where I would like for us to look for some tops to go with various color slacks. I would also like to get her a couple of pairs of khakis for everyday wear. Clothing continues to be an issue although we are making progress. She is getting more accepting of my help. That only occurs when she just can’t find something. She almost always likes to try on her own first, but it is getting harder and harder for her. The problem is twofold. First, she can’t remember where she put her clothes. When she looks, her eyes have difficulty seeing them. It is the brain and not the eyes that is the source of the problem.

This morning about an hour or 90 minutes before the time I wanted to leave she was wearing a pair of khaki slacks that are too baggy for her around the legs. They fit fine in the waist, but they make her look heavier than she is. There were cheap slacks that I got her a month ago for ordinary daytime wear. She was also wearing her yellow sweater that is very soiled and stretched around the cuffs of her sleeves. Unfortunately, it is her favorite sweater. Even she told me early this week that it needed to be replaced. I have bought two sweaters to replace this one in the last 6 months. I don’t know where the first one went. I bought the second one, and Kate still gravitates to the old yellow one.

At any rate, I told her I would like for her to wear something else for the trip since we were going shopping and then to eat dinner in a nice restaurant. She asked what I would like her to wear. I asked her if she would like to wear black or brown slacks with the top she was wearing. She said brown. I went to my closet where I keep several pair of slacks and picked out a brown pair. I took it to her and then picked out what I thought would be a better top. I left her to dress while I finished packing.

After twenty to thirty minutes, she walked in wearing the identical things she was wearing before. I said, “You’re not wearing the clothes I picked out.” She asked, “Where are they?” I told her I didn’t know, that I had given them to her. Then I went back to her room to find them. I couldn’t find them anyplace. I finally went back to my closet and picked out a pair of black slacks, and she wore the same top she had on.

I asked if she had packed her suitcase. She didn’t remember. I opened it and found nothing in it. I left her to pack it. On Wednesday afternoon I bought three tops at one of her regular stores and packed them in my suitcase. I also packed underwear, a bra, and a couple of pair of slacks in case she didn’t remember everything she needed. I always have a toothbrush and toiletries she is likely to need except for makeup which she doesn’t regularly use.

Something else happened before we left. She came into the family room with her hands filled with small pictures in picture frames. She asked, “Should I take these with us?” I was puzzled and went over to see what she had. She told me, “I don’t want the children to break them.” I told her we were going to the boys and it was best to leave them here. Apparently, she thought I had told her somebody with children was coming to our house. I am seeing more signs of this type of confusion.

When we left the house, we went to lunch. She showed no signs of being perturbed. We had a nice lunch. The drive was a long one, but we were comfortable. I was not anxious as we had no particular deadline to be in Nashville.

A Little Latere

We just ran over to the mall and bought five tops and two pair of khaki slacks for Kate. We are both pleased with the selections. I am particularly happy that the total dollars spent was less than I expected.time. We bought a pair of slacks that are a size 16. I have been suspecting that some of the 14s we have been purchasing were a little too small.

We are leaving for dinner in about 15 minutes. It should be a good evening.

8:38 pm

Nice dinner, ready to relax

We had a terrific dinner. It turned out that the restaurant at which we ate was not the one I had intended. The good news is that it was very good. We are now back in the room. The TV is on to a Whoopi Goldberg movie. I think it may be Sister Act I or II.

Karw is discovering that there are many things she neglected to pack for which I did not cover her. She has no sleeping attire, no toiletries, no bra, and no night guard. This reinforces my decision to cancel our trip to Europe. I need to cover too many things for her. It is a challenge for me to remember all of my things as well as hers.