More Memory and Deja vu Issues

Nothing dramatic has occurred since my entry last night, but I did want to mention a couple of things. First, we were watching Breaking Away via Netflix when she got up to take her medicine. I turned off the movie while she was away. When she returned, I started it again in the place where we were when she left. In a few minutes when we had reached a place that was clearly beyond where I had stopped before, she said, “I remember this part.” I said, “From when?” She looked at me funny as though I had asked a dumb question and told me “right before I go my medicine.”

This afternoon we went to see a movie that had been produced and directed by a man who had grown up in Knoxville but now lives in New York. In part of the movie, it mentioned that he had grown up here and showed pictures of his house and neighborhood that looked very much like a neighborhood near us. After the film, I made reference to this and discovered that she had either forgotten that he was from Knoxville or simply missed it. We had even talked with someone who sat next to us who mentioned that the producer/director had spoken to his Kiwanis club this past Wednesday. He had talked about growing up here and how that related to his adjustment to being gay. Still she missed the fact that he was from Knoxville.

Tonight we went our for pizza. She walked up to the counter with me to pay. We spoke with the owner who was handling the cash register. He said something to her, and she said, “Oh, yes, you told me that last time.” This was her first time to talk with him. This is similar to what she says to me all the time. It comes up a lot when she asks a question that she has asked before; however, she also says it when she hasn’t asked the question before. I think it must be her way of covering for herself.

It is these kinds of experiences that make me think that she is missing much more of what is said in conversations, plays, movies, etc. than one would otherwise suspect.

Getting Tired

For the past week or so, Kate has been getting more tired than usual. In fact, she seems lethargic except when she is outside working in the yard. Fortunately, she has been doing that more recently as the weather is not as hot.

I probably would not make much of this except that it has been accompanied by less enthusiasm for doing things she would normally like to do. For example, yesterday was PEO day. She got ready without any difficulty, but she did not seem eager to go. She was very lethargic. In the car she closed her eyes as if she were going to sleep.

When I dropped her off, the past president of her chapter, walked over to the car and greeted me but not Kate. Then she turned around and walked up the drive and into the house without waiting for Kate. I felt sorry for Kate. This is the kind of thing that tends to happen when people know you have Alzheimer’s. I don’t think they mean anything by it. I think they believe that the person with Alzheimer’s just doesn’t notice or care. This is similar to the fact that people seem to look at me more when we are together in a social situation. I have to admit that some of this happens (I think) because Kate may communicate less than she used to do. It is harder for her to get into an extended conversation than in the past. I see signs that this is becoming more common.

Another sign of this lethargy occurred this afternoon. After we returned from lunch and a shopping trip, she said she was going to try and rest. Just before 4:30, she came into the kitchen. She seemed a little groggy as though she had just awakened. We hugged. Then she said she thought she would go out on the patio. I opened the door for her, and we both went out and sat for about 30 minutes. She indicated that she was hungry and would like to eat early. I made reservations for 5:30. She seemed tired on the way as well as when we sat down at the table. She was not talkative which is not unusual. When we left the restaurant, I commented on the fact that it was early (6:30) and said that we could watch the movie Breaking Away when we got home. She indicated that she would be ready for bed. We had not gotten very far in the movie when she started falling asleep. I turned the TV off.

Before we left for dinner, Camille called me to say that she would like to invite Kate to lunch sometime and wanted to know when would be a good time. I suggested this coming Monday. I told her to call back for Kate on the landline, and she could ask Kate but first we should establish the time so that I could make sure she is ready. We decided on noon. In a couple of minutes she called back, and I put Kate on the phone. She was thrilled that Camille had invited her. I will have to tell Camille how much this meant to her.

These kinds of things have made me think once again that Kate is going through another period of decline. First, it was the decline in short-term memory. Now it appears that she is losing the ability to focus on things which leaves her with little to do. This may be exacerbated by having to work so hard to follow things that she is withdrawing a little bit. At the same time, she is working so hard that she is worn out.

Knowing is better than not knowing.

Although Kate clearly wanted to know if she had Alzheimer’s, there have been times when each of us wondered which is better. I am now confident it is better to know. It has given us a higher quality of life together than we would have had otherwise. If we hadn’t found out, we would have continued on our merry way as we had been doing before knowing. This is strange because we both (especially Kate) felt for a long time that she had AD. But knowing took away the doubt and made us stop and take advantage of the good time we have together. In every respect, the days since diagnosis have been the best of our marriage. Even as I say this I know that the future will bring on the worst times. At least we will have made good use of our time since Jan. 21, 2011.

Another Small Sign of Things

Kate was with me when we met with Dad yesterday afternoon. She also knew I was out late at the hospital with him last night. This morning I spoke with her by phone before going out to see him. When I got back home, she had been working out in the yard. When she came in, she didn’t ask me about Dad at all. If it were not for her AD, she would have asked me right away about him. As it was, I simply told her. I am confident she would have asked at some point, but at that moment she had completely forgotten about him. I see this kind of thing all the time. While this incident has no negative consequences, there are times that it does because I will assume she has remembered something when it turns out she hasn’t.

Last week she missed a neighborhood association board meeting because she had forgotten. She hadn’t told me about it. That reminds me she hasn’t told me about her next hair appointment. She generally does this shortly after coming back from her previous appointment.